It's time we talk about my chronic illness

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Well, it's about time i share with you my chronic illness and new diagnosis.
🌟My IG - lindseymunette
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*im not a doctor and none of this is medical advice, just my own personal experience
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I have hEDS, too, and wasn't diagnosed until adulthood. It's such a rollercoaster...the pain and fatigue were especially hard to come to grips with needing help to deal with day to day. I'm a medical professional myself and it still took a ton self advocacy to find someone that accepted what I was saying. I hope that you have more good days than bad. 💛

nataliefbehler
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omg I think imma about to cry bc I have Ehlers Danlos Syndrome too and I've never meet anyone with the same condition and all my life I've been blamed bc i was in chronic pain and my other symptoms. I discovered your channel because I have olive undertones too and I stayed bc in your description you mention being neutodivergent and I have ADHD and I felt idk seen. I hope your symptoms get better, stay safe 💙💪 we can go through this

eternalsun
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Interesting story, helpful self advocacy advice. I’m not super flexible but something I still had to learn working with a Pilates trainer was to resist taking movements to the extreme of my range of motion and instead focus on staying in a function, practical range. Since you danced and did gymnastics you’re probably trained to instinctively reach for the farthest range you can and it feels good to stretch fully. But I’ve retrained myself to stay in functional range that means my joints are stable during the exercise. I certainly wouldn’t recommend yoga but I do recommend Pilates with a private instructor who is a former dancer and has a kinesiology education.

heysaras
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Ok I think YouTube keeps flagging my comment as spam because I linked my IG, but I have a lot of similar issues and am here if you ever want to talk!

StateofKait
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It's actually a super common misconception that yoga is only about stretching and flexibility! A really good yoga teacher will also teach stability, strength and muscular engagement equally as much as flexibility / mobility. But you do really have to search to find those teachers. I'm hypermobile and once I started practicing in this way it was a game changer for me! Not at all saying that anyone has to do yoga. Glad you have found what is working for you! And thank you for sharing your story and personal insights ❤

carinawulff
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I can 100% relate to your story. Chronic pain and fatigue is a real thing. And it takes quite a toll on the body and mind. Glad you’re heading in the right direction ❤

greenjewelbeautea
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Just want to chime in with my thoughts and support. I'm always sorry to hear of someone else joining this awful club. I've been through the years of " your tests are all normal", followed by a shrug" the innuendo of "it's all in your head", the always helpful "you just have to learn to live with the pain". It's been close to 40 yrs now since I started on this journey and I still have people tell me it's not possible for "one person to have that many things wrong". People wanting to help, even if they don't know me so they insist I need to do this or try that thing that helped their friends mothers sister. In 30+ years there is a very good chance that I have tried this, that and the other thing and they didn't work. I have no words of wisdom or any truly helpful advice. I just wanted to say I'm sorry this is what you're dealing with and if it helps, especially at 3am, know your not alone.
By the way, your makeup looks great. I wish my hands were as steady enough to blend half as well as you. And don't get me started about eyeliner and mascara.

jeanetta
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I also live with chronic illness and my neck actually hurts now from nodding along to so much that you were saying 😄 I am so happy to hear that you finally received a diagnosis 💙 I really enjoyed this kind of video, would love to see more like it 😊

beccas
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Thank you for this, my son shares all of your symptoms and traits. He was tested for Marfan Syndrome, but I'm not sure if EDS was considered. After watching your video, I am going to push more. Thank you so much. 💜

leonaoceania
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I suffer from IBS and chronic pain. I really relate to working out for bad posture. I am currently doing physical therapy for my posture to help my back pain.

GlamAngel
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Hello Lindsey, I am very sorry for your diagnosis, I also have a genetic diagnosis that affects my mood (bipolar disorder), it is different, but it affects my daily life as well. I'm sorry, you have to learn to live with it and be happy, because happiness is not something that you are happy all the time but you have to treasure the moments that make you feel happy, try to lean on the people you really love and they love you. I hope you feel better and can alleviate the symptoms. A big hug and lots of encouragement. Much love 😘

elacampusano
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You’re remarkably strong! It’s great to finally get the diagnosis and understand what works best for you and what doesn’t, so congrats on that!
I had IBS (irritable bowel syndrome) and it was really painful and uncomfortable. I struggled working and studying at the same time as it was the worst at the morning and I couldn’t really leave the house while experiencing symptoms… I was lucky to find a doctor and therapist that helped me a lot. Finding the right specialist is super important.

Marina-vd
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Me too just being diagnosed hEDS thank you so much for the video

takaidesu
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I'm glad you're doing well now hun❤

worthigirl
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So affirming hearing someone else’s experience with MCAS, on the way to a deeper diagnosis. Still on the path to a final diagnosis myself but your story gives me hope that it’s possible to find one! Please consider sharing more about the journey ♥️ would also love to hear how you found your naturopaths!

nomadesseasmr
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Thank you for sharing this! So sorry you’re dealing with this all, chronic illnesses are such a struggle physically and mentally. I got diagnosed with POTS about 8 years ago now and about 2 years ago started having new symptoms and was diagnosed with MCAS, it has been a real struggle treating and a lot to deal with as the symptoms and triggers comes and go. Eating is definitely a huge struggle and activator. I’ve also been dealing with dysphagia for over a year with no answer or help so far. It can also be related to MCAS and allergic symptoms so keep that in mind when speaking with your doctors. In case that helps! ❤ I haven’t reached a treatment for it either yet, also saw a speech therapist and ended on the same note more or less. You truly do just get bounced around between specialist and answers can take sooo long to get. It’s disheartening. Thinking of you and hoping for answers and help for you and all of us struggling. If you have anything to share that has really helped with your MCAS symptoms, I’d be greatful to know someone else’s experiences.❤

KatieJoOrr
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A cure would be great but alleviating the symptoms is great too. Feel well! Get as much nutrition as you can! 💜

jessabeauty
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I am hyper mobile as well. Same experience with stretching. Makes pain way worse.standing to long hurts, sitting to long hurts, laying down to long hurts . Cars hurt . Soft temperpedic mattress helps and weight lifting helps . What else helps you ?

michellek
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I have dysautonomia myself plus tons of other goodies. My happy place is my bed. I wondered why you didn't put out more content when you are so wonderful. I'm sorry that you are going through all of this. I love the grwm chats. But I love all of your content. 🎀
I have a question or two. Why does makeup turn orange on me if it doesn't have a good purple undertone and being so pale how can I cover hyperpigmentation on the apple of my cheek? I put a ton of products on it and one bit of blush and it's back darker than ever.

MellaYellow
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Youre beautiful ❤️ is that your natural hair color?❣️

heathermjordan-durant