Cost of Caring Podcast | Demystifying the Use of Health Data for Research w/ Evelyn Pyper

Tune in weekly to deep-dive into the ways money affects caregiving, life, and relationships with renowned special guests in the caregiving space. This week, we talk to Evelyn Pyper of @PicnicHealth about demystifying the use of health data for research.

Evelyn Pyper is the Evidence Strategy Lead at PicnicHealth, a patient-centric real-world data company. Her career in Real World Evidence (RWE) spans the public and private sector as well as regional and global markets. Evelyn has a BHSc in Health Sciences with a minor in Psychology from McMaster University and a Master of Public Health (MPH) degree from Queen’s University. Evelyn is currently completing her doctorate (DPhil) in Evidence-Based Health Care at the University of Oxford, with a focus on digital health.

In this episode—

‣ What are the different ways that data can be used for health research?
‣ Difference between real world data (RWD) and real world evidence (RWE)
‣ Challenges associated with collecting and analyzing RWD for health research
‣ Benefits of using RWD for health research
‣ What is “patient-centric” vs. “patient-mediated” vs. “patient-generated?"
‣ Processes to ensure privacy and protection of patient health data
‣ Processes to ensure secure storage and transmission of patient health data
‣ How else can patients be assured that personal health data will be used responsibly in health research?
‣ How people can be empowered to control their own health data
‣ Benefits for patients or caregivers from participating in health research
‣ What are the ways in which findings from health research can be translated into practice?