What is Dysautonomia?

Learn the basics about Dysautonomia, such as a simple explanation and common symptoms.

[thisisaname]

Holy crap this is making more and more sense. I've always been told my random heart palpitations and sweats are just anxiety yet I know they happen when I'm not having ANY anxiety. And now my body seems to be unable to regulate it's temperature. I go from feel extremely hot (like unable to breathe hot) to freezing in a short time. Sometimes my chest and face will be burning but my arms and legs will be freezing. I'm extremely heat sensitive and prone to bad brain fog and nausea. I can't exercise too much without being unable to breathe. I also can't digest most foods properly and am always getting acid reflux or other problems. Every time I've been to the doctor my blood pressure tests as normal (probably because my heart palpitations never happen then...) but I have high cholesterol despite being a good weight and having a healthy diet. EKG shows normal heart function.

[greywolf]

OMG. The information you give in this video is life saving. I've suffered for years and not one Doctor takes me seriously. Now I know what words to use in medical appointments so I can get the treatment I need. Thank you so much for your videos ❤️

[randomheadful]

Your videos have been helping me to articulate my symptoms to my cardiologist. It’s been an uphill climb. But I finally got put on a beta blocker and it’s been helping so much. Still have a ways to go but making progress. Thanks for sharing all this valuable information!

[erikacaceres]

Thank you for bringing awareness. I have Dysautonomia myself.🙂

[joshuacorona]

EXCELLENT EXPLANATION! IN 3 MINUTES I ABLE TO GRASP AND UNDERSTANDING THE CORE MEANING.

[ramonapartridge]

I have this POTS perspiration odd times, severe small fiber Polyneuropathy, 45-50%hf, fatigue, seronegative lupus, seronegative rheumatoid arthritis, dizziness, severe restless leg, anxiety, just a lot of things going on on. On tilt test my left side had full neuropathy symptoms I panicked trying to not to pass out, rapid heart rate, told increased by 70. It was the longest 10 min of my life testing

[patriciapendlbury]

Dysautonomia can be hyper...sympathetic or hypo....parasympathetic. I experience mine like when you least expect it my system goes into hyper flight or fight with severe blood pressure and arrythmia. And there are no brakes. In other words it doesn't correct itself by getting the equilibrium with the parasympathic. I'm heat intolerant and have a sensitivity to noise and my nervous system gets overloaded by too many people or too much activity around me.

[georgewilliams]

With me it started when I bent over to pick some thing up. I would get nausea felling then get dizzy. It was like seeing double that would last about ten seconds. As luck would come my way I went to Florida Rehabilitation for the handicap which I am. Hearing loss. They sent me to 5 doctors. After 3 years I went to rehab. 3 vists later I was on treadmill where when i got off blood pressure went down 15 points. They told me they could not do anything for me. Rehabilitation sent me to local DR. Thompson. That's where I found I was not crazy. He has the same condition only his is worst. He passes out from it I have not past out hit many walls because i get up too fast. Now 15 years later I am dealing good with this.

[carlkeyton]

Could this be what I have? I get random heart palpitations. I go from extremely hot to cold. I also suffer from cold intolerance and heat intolerance. Just a bit of heat and I’m drenched and same with cold. Always blamed on anxiety. I’m constantly changing my furnace from 68 to 73 lol every hour. My face could be hot and my hands legs arms and feet ice cold. I’ve had the full work up and the doctors blame anxiety. Ekg, blood tests, 24 hour heart monitors etc etc. nothing ever comes out of it. Shortness of breath with little exertion. I am a smoker though. I’m 37 years old.

[abbieborja]

Hi, your video and explanation was spot on. Thank you for having me understand. But I have a question. I notice that every time I touch something really cold, my heart has an uncomfortable feeling. Do you think I should get it checked or it’s really nothing to worry about?

[ridalaamoumi]

I was recently diagnosed with dysautonomia and it’s so horrible. I m nauseous all the time since the moment I wake up. I even prefer to stay hungry and not eat anything. My heart randomly starts beating faster and I think I’m dying. I don’t really know what to do. I have been on medication for two years now and nothing seems to work.

[joanneclark]

What are secondary things? Can you be side diabetes

[jainendramishra]

I have heat intolerance like breathless in heat and shivering in normal water bath or wet in rain and breathless after physical activity but my all medical reports are normal is it disautonomia or pots or autonomic

[_sina_tpwk_]

I have alot of the symptoms, I also have t1d what do I do?? I can't just go to my doctor and say that they will think I'm crazy!

[Vote.for.justice]

What is the life expectancy in dysautonomia please tell me

[SkeppGlocc]

I have MALS and I need work up for this.

[joanneclark]

Is it nervous system disregulation?
Need rewiring? Vagal toning? Stress related

[carolinepalmer]

What doctor/ doctors are the ones that diagnose & treat this?

[thedoopa]

Yup. Had to quit the job iv had for 16 years because of this.

[irishman]

I have this and have been in the ICU 5 times this past year. They did place a pacemaker which has completely resolved the syncope. BUT my heart rate still goes very high, anxiety thru the roof, GI issues, inability to control my body temp, nausea, on and on. This is hell.