Seizures in Music Class #awareness #class #college

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FAQs ▹

1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and suspected POTS
2. How tall are you?
‣ 5'4"
3. How old are you?
‣ 17
3. Am I in school?
‣ I'm currently studying art, music tech and English at college!
4. What is FND?
5. What is Tourette's?

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Tourette's syndrome is a neurological condition and disability which causes involuntary movements called tics. I use my platforms on social media such as TikTok, YouTube and Instagram to advocate and raise awareness for the condition and show what it is like living with a disability as a teen in school.
My name is Zara Beth (zeezee25 on tiktok) and I post videos about tics, tic disorders and what its like to be a teen living with Tourette's syndrome, Functional Neurological Disorder (FND) and a seizure disorder (NEAD/NES).
I show what its like having tics and Tourettes in class and in school and college, vlog, and I also bake, do other challenges and answer all your questions in Q and A videos.
I am also an ambulatory wheelchair user so I show what life looks like using various mobility aids and how needs change from day to day!
I am also a musician! My newest release is my first single (original song) called "She's Mine" which is now available on all streaming services - I sing and play piano, guitar, ukulele and I write, produce, mix and master all my own songs and content myself!

[cordestian]

I'm so sorry you go through this. Thank you for sharing your experience. As a nurse, this helps me

[RobertWWD]

I was diagnosed with Epilepsy when I was 2.
I had a Seizure in Kindergarten and the Teacher called my Mom to take me home.
Both my Mom and Dad were Army National Guard back then.
When I was 8 I had a Brain Tumor surgically removed.
24 years Seizure free.

[BeanieBabyXx]

I know there's a girl in my class who has a similar condition. I remember her having to lie on the floor once because of it and some of her friends sat with her to keep her company as she came out of it.

[ymb]

I remember in high school I took a ‘bathroom break’ and just started walking the hallways. I go down the stairs and a girl in my grade was having a seizure (apparently they had everyone on lockdown after I left so nobody would see it), a bunch of admins and the nurse around her. None of them thought to support her head, so I took my sweatshirt off and my t shirt went with it. I was pretty hefty at the time, but wasn’t thinking about that, just placed it under her head so she wasn’t banging her head on tile floor. We became really good friends after that.

[lillianrose]

My boyfriend has epilepsy and he gets absent seizures sometimes so I know what your going through and I’m sorry that you have to go through that but I’m glad people like you raise awareness ❤

[highdesertbiker]

sorry you have to go through this. you are very pretty and sweet. life is fked up and i wish you the best

[inkedmomblu]

I’m 43 but I remember in 6th grade there was a girl in my class who had something similar. Being nasty children, everyone thought she was faking it for attention. Also the late 80’s and early 90’s we weren’t very informed. I feel guilt when I think back at nobody believing her. Thank you for your videos. You are helping to educate people and bring awareness to a pretty silent topic (by silent I just mean that there isn’t much talk or education about it). Thank you for teaching this old lady new stuff. You are strong and brave. Wishing you so much happiness 💜💙

[freddie]

My cousin, who is 24 years old, has special needs and requires a caregiver. Additionally, she has been diagnosed with seizures but we will always love her and we are sorry you have to go through that😊😢

[alanjagroop]

I know how it feels. I have it too. I try to ignore the pain. As a man. Nobody gives a shit. Until it gets critical. Fainting away. Usually when I have it. I cant tell someone. Because it affects my words. Usually try to ignore it. The overheating and the pain. Until I can get safe place. Or find someone that can help me. But its tough. Its a huge struggle.

[ameliahayward]

I'm so sorry that this happens but you're so positive and deserve the world <3

Edit: thanks for the likes!

[SkyYT]

I’m so sorry u had to go through this scary time😢😢 I hope you feel better 😊

[brodymcgriddy]

Im so sorry that you have to go through this, we all have challenges in life, all different and unique. But thats what makes us unique. Your so gorgeous but more importantly your so amazing and have such a good personality. Im in rough times right now, but every time i see you post on yt or insta it makes my heart so happy to see you and how you are, good or bad. Your golden and i hope you know that, you make a difference, your making one right now, stay safe and stay you. Love you!

[mrmouse-olpw]

As a severe epileptic who has several types of seizures myself, this was very anxiety endusing to watch. Sometimes i think its harder on my family then myself. Sorry kiddo. Please don't let this define who u are. ❤️

[pra_schleich]

My friend has fnd so she knows how this feels. I have to help her sometimes, for instant she scratches herself and doesn't realise so I have to hold her hands apart to stop her from damaging herself. I know it's hard but we all are here to help ❤.

[SophieHawke-dd]

You are so strong and manage this amazingly xxx

[kingsavagethest]

Quick runthrough of what a childhood absence epilepsy is for the curious ones :

• sudden impairment of consciousness (can be preceded by warning signs)
• No change in body tone
• lasts a few seconds
• usually remits by puberty
• no post ictal confusion (quickly comes back to the real world)
• classic EEG finding : 2.5-5 Hz spike wave activity superimposed on a normal background EEG
• Ethisuximide is the first line treatment
(Blocks thalamic T type calcium channels)

Hope this was helpful :)

[WHERE_IS_EL]

I remember in 6th grade I was in math class and a kid started having a seizure and started saying protect my shoe! Protect my shoe! And then started to fall so my teacher pushed a kid out of the way and dived headfirst catching her.

[Kindred.spiritxx]

I’d never realized seizures were this scary in person until yesterday. My one year old baby brother had a seizure due to a high temperature fever. 106 was the temp. Nothing we did would help get it down. I was terrified, at the age of 13 in hysterics as I voiced my fears to the 911 operator on the phone. My mother was panicking screaming and pleading for him to be okay as we watched his head jerk and I counted his each breathe.

I’m forever greatful for those who showed up yesterday, they were there within literally 3 minutes. I was terrified to even hold the baby that day. He would shake and shiver and I’d freak out because I was alone as I watched him. My mother was sick, so I was left to the task of babysitting. It was so scary, poor baby.

[isabelcarballo]

I’m so sorry for what you go through. I want you to know that we all love you and support you and I’ll be here any time. I’ll pray for your health, happiness, anything. I just want you to be safe, love u 🙏🏻💗

[CallMeRachy]

At school I have lots of absence seizures I’m always a bit scared but you will be ok!❤