Damn, POTS! 👀 How to get through a POTS episode #shorts

#potssyndrome #dysautonomia #pots

POTS is considered to be under the dysautonomia disorders umbrella which are disorders of the autonomic nervous system. It is basically an inability of the body to compensate for changes in posture. When we stand up because of gravity blood gets pulled to our lower extremities and in a healthy person, it compensates in the cardiovascular system to send blood back to the brain. When you have POTS this system is defective and your blood does not return properly to the brain. This causes many symptoms such as dizziness, blurred vision, syncope, nausea, racing and irregular heart rate (as the heart tries to compensate for this lack of oxygenation by pumping faster), chest pain, shortness of breath, headaches, fatigue, brain fog, blurred vision and the list goes on.
Now imagine this happening every time you stand up? Life would become very difficult. Imagine how hard it would be to get groceries, have a shower, cook, clean, dry your hair, stand up in lines...
And all of that is completely invisible to an outsider, except when we black out and fall on the floor.

s a y h e l l o

a b o u t m e

I’m Daniela I have been diagnosed with several chronic illnesses. I look normal, I do things, have a job and go on vacations, but inside I'm sick. I live with several chronic illnesses and they affect my daily life. I am in constant pain and struggle with brain fog. Although I'm constantly looking for new doctors, new treatments and solutions I have also accepted my illnesses and do not let them define me. In this channel, I share a little bit of everything. Information about my conditions, my travels, my dreams, my journey, my life. This channel is about life through chronic illness lenses. Come and join me and see what I'm up to lately.

Check out those other videos about my chronic illness story:
👉🏻 MY FIBROMYALGIA STORY

👉🏻 IF YOU COULD SEE. MY ILLNESS

[saintessa]

Honestly haven't heard of this until... This year. I want to know more, so I can be more understanding.

[ToeKneekneetoe]

I always shop at the same place. So no one calls the police on me for being drunk! 😂

[ThisQuietStorm]

I’ve had to do this but I just thought that it was low blood sugar. I’ve been told by doctors that I have very low blood pressure, low blood volume, low iron and that I should consume more salt. I faint or get close to it regularly… I’m only just now learning that this issue has a name and there are others like me!!

[LexiHazelle]

Omg WOW!! This is relatable I've had to do this in public too several times just to prevent myself from fainting. I always find it highly embarrassing, but hey when you have Pots you cannot help it.

I've passed out at 3 different jobs, and almost passed out at a 4th job.

I almost passed out in a store too. Summer's are the worst for me. But Im okay now that its winter, the cold doesn't affect me the same as heat.

[SarahSmilesu]

I now carry a bag of tricks everywhere. Beef jerky, pickles, electrolytes like Gatorade and yes a blow up pillow. I only shop at certain places and I introduced the manager to what P.O.T.S. is and if they see me sitting down in the produce section. But honestly I don't even go out anymore without a PCA because that's how bad it is for me now and I just don't want to risk having somebody interfering with my boundaries or calling 911.

[LampWaters]

I cud cry watching this. For do long I've been so confused about my health. Feel like tgis everyday and sitting is no longer enough i have to lay down. I just want to be active, to work, play, go out, enjoy summer, play with my kids, cook dinner. Thx for sharing. I want to know how to have normal life im tired of avoiding everything.

[clauthequeen]

I have been dealing with POTS since 2022 (post covid infection). I wear compression stockings (above the knee) during daytime, drink lots of electrolytes, drink alkaline water, snack on salty pretzels, take a shower while sitting, sleep 7 hrs every night, take Benfotiamine, NAC and D3(with K2) and avoid alcohol and extreme temperatures. These things help me seem “normal”

[audreyhretz]

just got diagnosed with pot’s yesterday. my symptoms have been a lot worse because i have had mono and i can’t sit up for a long time. Yesterday on my way to the ER we had to call an ambulance because we had no clue what was going on lol. Knowing that someone else has this is very very stress reliving for me. I want to thank you so much for sharing this with everyone. it means a lot

[LinaMariaS]

I drink water with electrolytes. In my country they sell it in sachets, basically they are rehydration salts. I always carry water and that little sachet with me, so when I have symptoms I drink that mix. Eating salt peanuts or something salty also helps. By the way, there are some pressure exercises with the hands and legs that help you to recover faster

[SSeagurllAndHex]

I Rushed to the er after a episode where my heart was flip flopping all over the place. They diagnosed me with tachycardia and possibly afib. They prescribed me metoprolol & eliquis. Ive had multiple symtoms since and recently found out my sister, nephew & grandmother all have pots. Ive never had any test except ekg. But i think i possibly have pots. I never had anything like this until after covid

[jaysonthomas]

My falls only last about 30 seconds. I didn't realize it could last that long. I get up and drag myself along and I stop kneeling down or leaning over.

[tinamarieziolkowski]

I am shaking through out my episode and I am either super hot or super cold. My heart races. Salt helps. Very scary

[AspenBreeze]

Just went to the doctor today to get a referral to a cardiologist to get a proper pots diagnosis and almost passed out on the exam table then proceeded to have a panic attack. The nurses and mom had to carry me to the car

They gave me a popsicle tho so that’s a win I guess

[lyssar]

It’s sucks especially when your with other people like this one time I was at the mall with my friends and I was having an episode and I had to sit down and I felt like such an inconvenience

[T_CameramanZzZ]

I feel you, I’m a 15 year old who is going through something rlly similar and i can relate very much, lying/sitting down too much or thinking about things can also make you feel weird and scared.

[Faithandseekerofchrist]

If this is how I am going to be for a lifetime then I don't think I can work anymore. I'm supposed to get better by February but the fact that there is no cure, how am I going to be able to handle my job that is a physical job? Basically all the things that I loved have been taken away from me because this is exactly the episodes that I got.

[jaeldekkers]

Aww, so sad!! I can't imagine having pots, it must be so difficult! Sending hugs❤❤

[englishteadrinker]

Grim! Dizziness is horrible. It’s good you know how to deal with these episodes but it must get very tiresome 😩. Lots of love ❤🥰

[jaggybee]

This is wild I am 55 years old. I’ve never heard of this. I am so sorry how horrible this must be.

[nah_im_hannah]

I keep emergency soy sauce packets on me because they have tons of sodium and it's in liquid form so it travels to your bloodstream faster