NephCure Back To School 2024 | 504, IEP, and more

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As the new school year approaches, we understand the unique challenges faced by families in the rare kidney disease community. Watch this empowering and informative “Back to School Town Hall” designed to equip you with the knowledge and tools to ensure your child receives the support they need.

This NephCure lead town hall consists of a patient parent panel, information regarding 504 plans/IEPs as well as tips on how to request a specialized diet for your RKD youth as they embark upon a new school year.

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What helped with my swelling, dizziness in school was compression stockings to help increase blood flow.

sarahmansoor
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I was diagnosed with C3GN, another very rare type of kidney disease at age 9. Now its been 10 years, I am now 19 and have gone through a lot of crazy stuff over the years but just recently started college and had to talk to student advisors for accommodations id need over the time of post secondary education. I have been given steroids, immunosuppressive drugs, ACE inhibitors, i have at 19 already had 3 renal biopsies, been in a come, had PRES syndrome near time of diagnosis causing me to lose my memory completely to the point where i didn't know my own mothers name.

sarahmansoor