The History & Innovation of C3G | Patient Summit Seminar with Dr. Corey Cavanaugh

During the 2024 Patient Summit, we were joined by 250+ patients and families who were able to gain knowledge and support surrounding their rare kidney disease and how to maintain their health.

Dr. Corey Cavanaugh, nephrologist and NephCure Specialist, presented an educational session surrounding the history of C3G, innovations that are coming, and how to best prepare.

[sarahmansoor]

I was diagnosed in 2014 at the age of 9, and at that time, the doctor diagnosed it as MPGN type 1. But after the reclassification, It's known as C3GN. I have been dealing with these kidney complications for more than 10 years now. Have had 3 renal biopsy procedures, been on steriods, Immunosuppressive drugs, ACE inhibitors, and so much more. They never found the cause for my diagnosis so it was idiopathic. One thing that i experienced which I don't know if anyone else has experienced is that when I was diagnosed, I was given cyclosporin, which is commonly used in treatment of glomerular diseases, but I had a very huge reaction to cyclosporin medicine, became severely hypertensive, had PRES syndrome causing me to lose my memory and then I ended up in a coma.
Just recently, after turning 19, have I started to take over complete responsibility for medication, appointments, tests, etc, instead of my parents taking care of everything for me. Just got a requisition to get blood test done, and I have my routine appointment coming up in December.