Shopping With Tourettes Syndrome || Disabilities In Society

hi everybody!

i filmed this a couple weeks ago showing what its like being in public when my tics are more severe. i had been having a more calm spell so this was a pretty vocal day for me compared to the past few weeks. i just wanted to show how it can take a toll on my mindset, i manage pretty well but its difficult having attention drawn to myself that i have no control over, i'd rather just shop in peace!

not every shopping trip is like this, some days i dont really have any issues and can go by unnoticed, but the severity of tourettes waxes and wanes.

if you see someone in public with a visible difference, please try not to stare. smile at us, it makes me feel so accepted.

hope you learnt something xx

[sk-gryv]

"do you want me to shout with you" your mum is an actual angel omg<3

[Julie-xgiu]

If I saw a person ticcing in public, I would only smile kindly at them. You never know what a person goes through, so the least we can do is show kindness ;) Btw I love how supportive your mom is <3

[cherry-may]

looks exhausting and you still manage to keep a smile! inspirational 🥰 you're mum offering to shout with you was so sweet ☺ can't imagine that the staring eyes makes it any better - keep your head up high!

[raysofrosie]

I hate the staring too. I have a complex tic where I wolf whistle, wink and point at people (mostly women) and I never feel it coming. I’ve stopped going out in public entirely cuz we haven’t found a good med combo yet and my tics are getting worse and I hate it. You make me feel almost normal so please please PLEASE don’t ever change or listen to any ridiculous people on the internet trying to bring you down. You give me strength and make me feel like I deserve a place in this world and I thank you deeply for that 🤍🤍

[rinwesley]

Teddy is so precious, supporting mummy when she’s having a rough day.

[OinksworthTheThird]

The thing I absolutely love about dogs, they don't judge.

You're just their human that makes noises, twitches and loves them you know? I'm glad you have Teddy and Teddy has you :D

Seems to be quite grounding for you that pupper

[fia]

I think you're so strong for still going out in public even though you get anxious from people staring and judging. It takes alot of strength mentally and emotionally to defy the thought of "oh..I might just stay home, it's too embarrassing, what if people look at me weird" and such. Props to ya for doing this and educating people on the internet.

[lydiajomua]

I have breathing and facial tics and sometimes I swing my arms like I’m trying to hit something out of the air. Usually it only happens at home where I don’t have to repress them anymore but I had a moment the other day when I was in public where I just couldn’t hold it in anymore and I couldn’t leave. I luckily had a fidget ring in my purse and that helped a little bit but my faces couldn’t be stopped and I got stared at by this woman. I apologized for disrupting her day and told her it doesn’t usually happen in public and she said well maybe you should just stay home next time then. I was appalled. I cried the whole way home. It was more embarrassing than the tics.

[erykac]

I love that your mom asked if you wanted her to shout with you 🥰 certain tics my fiance can get away with "copying" as it won't trigger them worse. And she'll always do it with me if it's getting bad because she knows it'll take as much attention off me specifically. We live in a very small town so there is definitely a lot of eyes on me when we go out. Thanks for sharing, we deserve to be seen in public too 🥰

[ot]

I have tics too, and when I read the comments I don’t feel so alone! Thank You Evie for spreading so much awareness! You have made things easier for so many people ❤️

[simcomark]

I couldn't help but smile everytime your glasses fell off your head onto your face 😎

[janeeden]

You're honestly such a sweetheart, I can't imagine how hard it is, sending love <3

[mrsspeechless]

Once a woman behind me made a very loud noise, I got SO scared, so I obviously turned around to look what happened as a reflect. I then realised that she had tics/tourettes and I just gave her a smile. Afterwards I wondered if I reacted the "right" way, or if it was annoying to her that I turned around to look 🤷‍♀️😔

[multiplekiwi]

Unrelated to your tics, but I’ve never seen you with that hairstyle and it looks so cute on you! 💞 I might try it out for myself sometime

[Tom-vkij]

I would proudly shop with you anytime! You have taught us all so much...recently I did see a young man with ticks - because of you, I smiled and had a quick conversation with him and it was so rewarding to see the gratefulness in his eyes...I want you to know, you make a difference and touch people!

[KayeMNchick]

As someone with invisible disabilities, thank you. I feel like videos like these help people without disabilities see how society is not build for people like us. Thank you for showing what even just a "simple" errand like shopping can look like for someone with a disability. I feel like we need to be more vocal about things like this. My family doesn't understand so when I say things like, "I need a shower, but I'm not sure I can take one" they don't understand that it's literally because my body has no energy to be able to do the task. So frustrating. I'm not some slob that can't take care of themselves...it's actually really difficult and takes so much energy. Prioritizing what needs to get done now is how I typically use my energy. But it's still a struggle.

[saraschneider]

How long do your tics usually last when they're continuous like this? These seem really hard on your throat and body in general.😔 I hope you were able to relax with some hot tea and a cozy blanket after this.

[wintermourning]

Evie, I just adore you. I've been watching you since I was pregnant and my son turns 2 this year.

Idk why but lately your long-form videos like this (I mean as opposed to the tiktoks bc I know you have much longer videos than this too) make me tear up almost every time I watch them! I can't even tell what kind of crying it is, happy or sad because I have so many feelings as I've watched your progress for better or worse over time, but I just feel so proud that I get to see you/be a part of your community. I also find myself actually worrying if you're doing okay mentally (well physically sometimes too!!) after I see videos like this where you're super active or having a really hard day. I've been through a lot in my life and I just can't believe the strength and positivity you exude at the young age you're at.

I'm probably at least 10 years older than you and I just feel like I can't even compare to your peaceful and positive energy. Anyway I don't know that you'll ever even see this, but I just wanted to tell you how amazing I think you are, and how lucky I feel that you share as much with us as you do. It's not like we deserve or you owe us as much as you even do share, but I'm so glad you do.

I just wanted to say thank you for somehow making life a little better for so many people. Even when I'm watching through a lump in my throat blinking back tears half the time, everything you put out leaves me feeling better than I did when I clicked it, and that's more than I can say about pretty much everything else on the internet right now.

We don't deserve you, Evie 💕

[nonyabiness]

A thought I had while watching... Does it make you more comfortable if someone recognizes you in public (as in they know your situation)? I feel like it would make me feel a bit more at ease... Just wondering. Hope you have a good day =)

[davidlester]

Evie you are such a strong character and stepping out in a every day routine and living with tourettes with people unaware is a inspiration to me with your character shining through and been a fairly new sub i had no hesitation voting for your national award because your not only educating me you stand out as a person that has inspired me with your many fine qualities you'll go far in life .Evie your a star and thank you for making me more aware of Tourette's and how you cope daily.Evie 100%