My Diagnosis Story | Living With Lupus

In 2015 my world was completely flipped upside down. Nobody wakes up one day & decides they’re gonna be sick for the rest of there life, but that’s exactly where I found myself. After spending the last 7 years experiencing some high highs & some very low lows I wanted to re-share my story to give hope to those struggling & let them know they are not alone. The world of chronic illness is a long & often can feel very isolating, know that you are not alone. We’re in this together!

Follow along & let’s thrive together ❤️

Follow me on other socials

Tik Tok / Instagram : Sheyenne Stodgell

[barbietheemuslimah]

I just been diagnosed with Lupus too glad you Ok we got this 💜💜💜

[ElBuffalo]

So glad your reposting this, even though it's hard for us to re-live it, if it helps one person it's worth it. Love you.

[ShakiraSmylie]

Don't have lupus but I have Diabetes for 11 years and you are a warrior ❤ im very sorry that you have to go through the your diagnosis of lupus 😢 and sending love and hugs 🫂

[naomis.]

Thank you for sharing your experience with this. It isn’t something I was even aware of until recently when my wife was telling me about it. Glad you were finally properly diagnosed and got the right treatment!

[mostlynobody]

Seems like we have been through the same grueling process. Getting someone to listen to you and believe that you are in pain is not very easy with this disease.

[shayleemoore]

OMG no pulse 😟 that’s insane. I am so glad you are ok.I have been told there are different types but I have only just been diagnosed with it so I am still learning. I have heard doing a marrow biopsy is horrible to go through.

[sammimoe]

I’m so sorry you had to go through all of that. Good to hear you are doing so much better now! Thank you for sharing your story, and I hope you continue to stay as well as possible. The info you share here is great!

[vanwyke]

Hope you are still doing better. Your story as told by you was excellent.

[donnajanecastle]

Ok I see, I didn't notice how you said it over a long period of time, so I can see now how you wouldn't think too much of it. Well it's good you finally found out after 7 years, and I agree it's all in God's plan. Thank you and good luck!!

[bibliobecks]

Can’t wait to see your future videos! 🤍

[Angry_Boomer]

Wow that must’ve been a very scary road to your final diagnosis! Sure it was scary for mom and dad too!

[leilanialvarez]

I just told I have it. I've been crying. Sa tx here. I broke my thumb and they sent me to the Dr and found out

[tanikalashae]

I was just diagnosed with lupus in July 23

[nopressurenodiamonds]

So did they even do an ANA or any autoantibody test to diagnosis you with Lupus? I am asking because I didn't hear you mention that, and I know that is the main test to get to the conclusion that its Lupus. I just had a positive ANA and am in the middle of my Lupus diagnosis, I too lost 50 lbs unintentionally over a 4 month period along with fatigue, rash, kidney involvement and so much more and I was trying to get some clues on specific test people with Lupus had to help me figure out my journey since its been so long for me as well, and I am getting close to solving this puzzle but the doctors aren't certain if its Lupus or Myositis or another MCTD.

[SDS]

Your story really struck a cord with me, I truly feel for you and what you mentioned that happened to you with your bloody nose and the ER dr prescribing you BLOOD THINNERS for it😳😳😥 I went to ER a year ago due to extremely heavy menstrual bleeding and the ER barely looked me over or ran any labs and just prescribed me hormones for a few days which made my bleeding severely worse and had thankfully I avoided blood transfusion but I have since then had 10 iron infusions. I'm also in the process of seeking a lupus diagnosis. You are a warrior. 💗🙌

[debbie]

How is it you wait so long to go to the ER?.

[khadijahameedaldeen]

I don't understand. You have nose bleeding, called epistaxis, and given blood thinning
That's why your bleeding became more severe.

[crazeekids]

It’s scary how incompetent some doctors are!!!

[a.h.s]

I have sle lupus it's terrible and awful to have.

[Murphystar]

My sisters lupus was stable for 40yrs then she took the Covid vaccine and died with Lupus complication.