NHGRI's Oral History Collection: Interview with Karen Rothenberg

Karen H. Rothenberg, JD, MPA is a professor at the Johns Hopkins Institute of Bioethics and the Marjorie Cook Professor of Law at University of Maryland. She is currently a guest researcher for NHGRI’s Bioethics Core and was previously the Senior Advisor to the Director on Genomics & Society. In this fascinating oral history, Karen Rothenberg recalls how she became passionate about health law and women’s health, and her experience taking sabbatical from University of Maryland School of Law to be a Health Law and Policy Consultant for the National Institute for Child Health & Human Development. She also recounts how she began awareness about prenatal genetic testing with Elizabeth Thompson, and shares her favorite stories about Francis Collins.

[genometv]

Interview Questions:

04:22 - What was your experience like studying health law?
06:32 - How did you come to the University of Maryland Law School?
07:47 - How did you start the Law and Healthcare Program at the University of Maryland Law School?
08:32 - How did you become involved with NIH in the early 1990s?
11:07 - Can you tell us about working with Elizabeth Thompson?
12:47 - What was Elizabeth Thompson's legacy?
14:12 - How did growing up in Cold Spring Harbor influence your work?
14:47 - Why did you start working with Jewish communities?
15:52 - What caused the most concern?
16:27 - How did you meet Francis Collins? What was your first impression of him?
17:42 - Do you think the rules of the Genomic Information Nondiscrimination Act will be revisited?
18:37 - What will the future of privacy look like?