'It's a silent disease': 15 years living with MS

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[denisek]

Reading the comments below, I feel the same way. I have secondary progressive, and getting out of bed is a struggle. The fatigue, anxiety, depression, pain, dizziness, falling, balance issues and trembling makes quality of life difficult. I used to be an RN, but had to retire…that was a bummer. It’s great this young lady is doing so well, but for the rest of us struggling, it only invites doubt: Am I not trying hard enough? Am I lazy? The answer is “No!” MS affects everyone differently with different symptoms and different disabilities. God Bless all my fellow MS’ers.

[muhammettellioglu]

i have RRMS since last 3.5 years. I'm still smoking and working night shift + going to gym and lifting heavy weights. Sometimes my left leg shaking but i just ignore it and it goes away in two or tree days. So live as normal person and enjoy life. If you place MS middle of your life, you will make it worse. We may have cancer, we may die in stupit car accident or a war. Fell lucky to be alive ! and don't worry :) we will not live for forever :D Now going to UK and going to work as Trainee Dental Nurse, some times i worry because it's hard job. But no i will do it. I can do it. Everything starts into our head and end up there.

[salamander]

Why do they always have someone with mild relapsing MS and not someone with secondary or primary progressive it leaves an impression. oh it’s not that bad. Most days are good? Not for a lot of people myself included.

[hamhock]

I was just diagnosed an hour ago. I don’t get it, I’m a strong bodybuilder and Kiev and active lifestyle. I don’t want to be hobbling around the rest of my life

[NYNC]

I have daily pain and walking difficulty. Her experience is not the norm and the general public shouldn't assume that many of us can have days when we're unaware that we have MS.

[driprubies]

My mom is not handling her battle with MS well at all…..I’d love for her to get this treatment!!

[sashadabiri]

I have had me since 2015 and it’s completely been paused the entire time thanks to these amazing treatments available

[Copperlaces]

I'm 32, and have RRMS. I was diagnosed in 2015 after going blind in my right eye and partially in my left. That was treated with prednisone. I definitely had MS in 2009. I was 17. I was in an abusive household, and tried to kill myself, and wound up in a coma for a month. That's how I got MS. It's been 15 years.

I have daily issues with mobility. Often it's extremely difficult to walk. Sometimes (often) I can't get out of bed. I haven't been able to drive for a decade. I'll lay in bed painfully paralyzed from my body tensing and locking up into weird positions. This is an awful disease. Fortunately, I feel quite well at least a quarter of the time. Quick, agile, sharp witted. It's such extremes.

I'm going to start having a caregiver come over tomorrow (Aug 21/2024). No family were wanted to help me out on hourly pay, at least I can get someone from an agency.

[georgecoasta]

Walking myself was difficult for me because of my parkinson🔥🔥 health situation but am happy that with Dr Madida medicine on youtube I was able to get myself cured. Now I can walk properly🙏🙏