Growing Up ‘Allergic to the Sun’ - Erythropoietic Protoporphyria

After five years of uncertainty, Savannah was referred to CHLA, where she was finally diagnosed with a rare disease, Erythropoietic Protoporphyria. In simpler terms, Savannah is allergic to the sun. Her disease may be life-altering, but it's clear to see she's overcoming every hurdle.

Read Savannah's full story here: