Family describes struggle with stiff person syndrome l GMA

Ayli Dunk, who is 14, endured seizures, hallucinations and her body freezing in place before her diagnosis of stiff person syndrome, the same disease that singer Celine Dion was diagnosed with.

SIGN UP to get the daily GMA Wake-Up Newsletter:

FOLLOW:

#celinedion #stiffpersonsyndrome #health #gma

[erikashields]

Good job Mom for following your gut and not giving up! May God continue to bless your daughter and family!

[heidiperez]

Way to go Mom!👏❤️ prayers and blessings to your family🙏

[virtualshoppers]

I was diagnosed with this disease over two decades ago. Fast forward to two years ago I took the first treatment to try to slow this disease down but my body rejected it and did the opposite. So I am really glad that the treatment worked for this 14 year old girl. I get super embarrassed when I forget words or scream out in pain when having spams. Will keep all that suffers with this disease and the family members who stands by their side in prayer 🙏

[frankieandkristentravel]

I'm glad she did that for her daughter. I had to do the same for myself. I, too, was diagnosed with a bad Autoimmune Disease. It took me 3 years to fight for an answer. I finally got one! If you know something isn't right with how you feel, then keep fighting like this Mother did for her daughter!!!

[carolyncooper]

What a super super mum you are for not giving up and not being ignored. I hope the health of your lovely daughter continues to get stronger

[lilirose]

No one will fight for you like a mom, that's amazing yeah God bless moms❤

[Meg-zfqx]

Amazing that the mother reached out to those famous doctors and even more so that they responded!

[pearlvongpusanachai]

So so happy for the family. Wishing this beautiful lady complete recovery ❤

[janiecapri]

I think about Celine Dion every single day and I'm so saddened by this diagnosis for her she is such a sweet loving talented woman and a great mother and with such a wonderful wife there's not enough money in the world to cure this the pain she is going through is unimaginable I'm just sickened by it I hope they find a cure no one should suffer like this like ALS also

[professorsprout]

That is so scary. Blessings to mom and daughter. I was at a cvs picking up my medication when I was in line behind a mom like this one. She was passionately advocating for her daughter to get her meds immediately which was earlier than her insurance would allow and they were to help her not reject the kidney the mom just gave her and yes she lifted her t-shirt and showed us the recent scar from the kidney donation. I thought we were gonna start a go fund me at the store everybody could see it was truly life or death for her daughter. What an amazing mom both ladies are.

[rei__tv]

Good job I hope Celine is also doing well. She's given us so much. It's heartbreaking.

[crystalbrooks]

We just lost my brother in law from this disease! He is at University of Tennessee now, for research on this terrible disease! Maybe some good, can come out of it, that might help to find relief for the others that have it! God Bless!

[smw]

Glad this teenager is doing better.

Hoping Celine Dion will be able to get her symptoms under control and lead a quality life. She loves to perform so I hope she will be able to return to the stage and recording studio soon... but only because it brings her so much joy. She is such a beloved icon. Her new music for the film Love Again is beautiful!

[Lissa]

this headline and the description are misleading this little girl has two different diseases with two different types of symptoms nowhere in the headline or the description does it mention the encephalitis only in the video if you look up stiff person syndrome symptoms you don't see hallucinations but encephalitis symptoms have hallucinations which means the hallucinations were from the encephalitis not the sniff person syndrome so say someone else that has stiff person syndrome looks this up your gonna scare them into thinking they're going to have hallucinations and memory issues they're not that's not a symptom

[Chamorrita-rgqp]

I had autoimmune encephalitis as well... Short term memory loss and seizures. I still have them til this day

[kaisaan]

That's right! Nothing like a mother's LOVE!!

[juanitaproctor]

Wow!! 😮 What a beautiful outcome!!
It would be really nice if Celine Dion would meet this little girl!! Give each other some encouragement and inner strength!
This brought tears to my eyes!
This momma was very persistent, and it paid off!!

[karentrimmer]

A friend's granddaughter has this. The family is glad attention is being brought to this disease. When the granddaughter is in the hospital, the staff/nurses have no idea what she's talking about. She's even been accused of making it up or being a hypochondriac by the medical staff.

[scootabean]

The human body is something else. I mean wow!!! Sending love to her and her family, and others who deal with this. Reading up on how Celine has been doing led me to this. Wow 🙏🏾☹️

[wordcoffee]

Wow my heart, I didn't think it was going to be something so serious. Thank God for his mercy towards us. Glad she's getting treatment