A day in the life of a patient with Retinitis Pigmentosa (RP)

Rebecca Hicks has Retinitis Pigmentosa (RP), an inherited eye disease characterized by gradual vision loss of peripheral and night vision. This is her story.

[Kuatoftlalax]

It’s not difficult being blind. It’s difficult going blind.

[bookwriter]

I have RP and congenital nystagmus (everything i see shakes), and its a pain in the butt. I think a trearment, maybe a cure, even, will be coming soon. Hang in there everybody!

[birratrueno]

Welp, I have RP, and everything they said on this video is true. When I was like 6-7 yo, doctors told my mother exactly the same crap, "he's going blind, go home". Now I'm 37yo and I'm not blind, but living side-by-side with the RP is slowly getting worse. Luckly I traveled to Japan in 2020, but I want to go there again in the near future.

How many more years do we have to wait to see a definitive cure? Is there any hope?

[selena]

Please i'm new in this i just found out that i have RP and it been 4 or 5 years since i notice that my view is weird, but please we need help in cure keep doing the research

[madinawala]

Hello... I am also suffering from this disease and I also hope for the treatment I have also two other patients in my home one of my brother and sister also suffer from this disease we are waiting for the treatment please help me

[eduardodipiero]

There is a study going on using NAC n-acetyl cysteine with good results for RP. Try to be informed about it.

[ABMSTUDY]

My mother has optic nerve damage due to ethambutal and doctor negligence please do some more research in this direction

[skylartwohy]

I have rp to and its not fun. I got tought to cook and cross streets blind folder with a cane. I also know braille?

[Archiejoeawesome]

It’s hard, and maybe a cure will never come, but we just got to keep our heads up guys ❤

[jackieferreira]

This video is four years old....nothing yet? Im up for abtrial if any... Im losing mine fast now

[alongamoemmanuel]

I am RP patient and i stay in Cameroon please help me

[menaemem]

There is no hope for curing this sickness, My mum have had it for 35 years now and no progress