Dr. Pradeep Chopra, MD | Managing pain in EDS: Connecting the Dots Part 1

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Presented at the 7th Annual ILC Conference in 2019 - Linking Hypermobility Pain Disorders with their Multi-Systemic Comorbid Conditions.

Our mission at The ILC Foundations is to help individuals overcome the challenges of living with Ehlers-Danlos Syndrome and other chronic pain diseases through knowledge sharing resources, awareness, education, peer support, and research to find a cure.
  1. The ILC Ehlers Danlos & Chronic Pain Foundation
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Комментарии
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Headaches 5:17
Neck pain 18:14
Joint pain 25:39
Tethered cord 32:02

Alyona-typp
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How are these conditions Dr. Chopra talks about so in depth are not more well understood and treated for regular people?

This video is 4 years old. I’m 26 and I know myself, and at least 50% of everyone I know (of all ages) have struggled with things like EDS pain, MCAS, gut problems, etc since childhood.

Yet I feel like I’m out here treating myself. Learning from YouTube and Reddit, etc and only going to my doctors when I need something prescribed or to fight to try to get a test ordered… but in reality we’re treating ourselves…and it’s expensive and draining.

Anotherhumanexisting
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Where are these conferences? I would really love to go.

theangrytiredzebra
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This is great. Thank you. But a correction is needed: dizziness IS a common symptom of a csf leak. A meta-analysis showed it can be prevalent for up to 30% of folks with a leak, so it's not useful as a differential diagnostic tool.

mountainmolerat
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I don't see any mention of Prolo or PRP prolo as possible assistance for the hEds patient. Both my sister and I have connective tissue disorders thought to be under the umbrella of hEds and prolo is like our glue.

jennifershamam