Understanding Motor Neurone Disease

One in a series of informational and educational videos on how motor neurone disease affects people's lives.

[padminivallabhuni]

My Dad died in 2021 with MND, he diagnosed in 2019, I never know about this disease until he get it. When he was showing his symptoms we assume that due to his hardcore job he is getting weaker also while he was eating hard to swallow & gets cough like he blocks to breathe, he used to cry like I want to live healthy for a few more years but god took him in his 50’s 52 year old I still miss him like anything and I hope there should be some curable treatment to future generations!

[ghirlB]

God bless you all 💚 u cared for a 39 yr okd woman with this and it was truly devastating to witness. She's at peace now bless her heart

[joannad]

I really appreciate this video as I have just been diagnosed last week and it is really scary. I can only deal with each day, as it comes.

[jabbersinc]

Jan gives me alot of hope. She's tackling this nightmare head on, a real champion

[keiheaherakiwi]

Lost my sister in law on 14th Sept 22 to this - from diagnosis 5 years ago to her leaving. Kia kaha sister...

[dianemainiero]

My mum and younger brother (48) passed away with MND mum had bulba poursey ..dreadfull ending of her life..(77)I'm hopeing one day they will find something to help with this dreadfull desese

[hazelculff]

Im currently stuying medicine, its sad to think that this was filmed four years ago and that these people have probably already passed away from this disorder.

[chloebuckle]

My grandad passed in March from mnd was so hard only had a year

[navarrofrank]

My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. this year our primary physician started her on Healthherbsclinic MND natural treatment, 6 months into treatment she improved dramatically. It has been a complete turnaround with her speech, she no longer needs the feeding tube to feed, the treatment is a miracle. She recovered significantly!

[drhamdaankhan]

Being a doctor it's so emotional disease!

[Imrankhan-emrs]

Every patient of mnd must be lesson Surah Rahman three times in a day inshallah they all will be cure its a more than like a magic plzzzz try

[gregjames]

What should I do with MND, which got me at 13. I'm 57.

[pam]

They need a cure, but all these diseases of the brain MND, Parkinsons etc they are not advancing at all! Even if they could slow it down!

[randomkiraxdxd]

Could the answer lies in how are we utilizing our minds- means to say: if we overthink or utilize our brains to the fullest, will the brain just out of unknown reasons- shut down or cast aside our bodily/physical motor functions so that our brains would be the only part of the body that is given priority to function?!?!?!

Just curious though, if there is no cure to date, then what we need is to improve their living conditions so that they can cope and still be productive despite their MND Diagnosis

[outresru]

just got to know one of my uncles has mnd, I'm very very sad. It's what Stephen Hawking had, his life prolonged but can't be guaranteed to everyone

[austinallen]

They’re calling this rare and not telling you the cause. It’s common since the v rollout. They just dont want you to sue them

[PrivateOGITH]

you Forgot About Stephen Hawking' Because he got it When he was Around 21 Years old Back Around 1963' so ☹️

[philipg]

Do you think Motor nourious disease could be hunan form of CWD which is a deer disease. The symptoms of that deer illness is separation from the herd, depression, blank expression, difficulty in swallowing, increase in thirst, changes in the deer movements stumbling lack of coordination tremors and death. Now I say this because deer is eaten in lots of places around the world but the number one deer eaters is New Zealand. Now the place in the world with the highest infection rate of MND yes you guessed its New Zealand!!!
Also ticks I believe can carry it to humans!! Probably through some DNA code(God code) probably most likely a organic polymer like cellolose which is in grass and washers out of humans as the stuff that holds poo together, humans can't digest it but the tick can so the tick takes nutrition from it messages through the cellolose (cassette) which could of be taken from a dying deer with CWD, then that lays dormant for years like in deers which can go 24 months before showing symptoms so in it's life cycle it could add up to MND dormant ratios? Then that bite could send that DNA god message into the Human blood? Which copies CWD to MND? Cellolose as some thing to do with cell production in plant walls?
The crazy thing is the bible states not to eat deer, that book is full of information but all we hear is all the negative stuff that people sell? Wish the pope and others could share more information that's
Anyway it's only a thought!!? Anybody who knows their stuff might debunk the idea?

[Createur]

That is Steven Hawking's handicap

[violagentsch]

Meds improve their quality of life? What quality? It is cruel to prolong these ppls lives with non working medication. All a money maker.