Ep. 8 - BEHAVIOR ISSUES & MEDICATIONS in Lewy Body Dementia

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Lewy body dementia (LBD) distinguishes itself from other dementias in many ways. BEHAVIOR ISSUES are a large component. And it's crucial to know that persons with LBD are extremely sensitive to MEDICATIONS. People living with LBD, caregivers, and expert physicians share their personal experiences.

This is Episode 8 of a special 10-episode series filmed by the Lewy Body Dementia Resource Center to help families, health care professionals, and the general public understand LBD and to bring much needed AWARENESS of this misunderstood disease which is not rare.
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So helpful! I am much older than you but diagnosed with LBD last May. All that you say really hits home. TYVM!!

innersting
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What is the medication that the woman mentioned helped her?

shaynadavidovhansonrealtor
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Seroquel just made my dad a bigger fall risk, as his legs became like jelly and too much for him.. He also said hallucinations worse on Seroquel.. Only thing that sometimes helps him sleep is Gabapentin- but the really haven’t been keen about giving him regularly— because of linkage to Dementia..


Aracept / Donepezil made my dad have horrible joint pain, fever like symptoms, anxiety and even made him say he felt like having a seizure- was horrible ..
I would think LBD stay away from certain Bladder meds ( Acetylcholine pathways), Statins and Proton Pump inhibitors…

shaynadavidovhansonrealtor
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What about Stem Cell, Exosomes or the Symbyx Red Light Helmet ( since they say for PD help) for LBD?

shaynadavidovhansonrealtor
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Is there anything for LBD that can help with negativity, apathy and mood issues that ups Dopamine — that IS NATURAL or NOT Carbidopa/ Levidopa (since C/L can cause negative side effects in LBD patients)?

shaynadavidovhansonrealtor
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No drug has helped my dad’s hallucinations and illusions

shaynadavidovhansonrealtor
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