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Patient Testimony #ivf #Taysachs #fragilex #canavan #infertility
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Thank you to our wonderful and inspiring patient, @beck_azaraf for sharing her story of strength, resilience and a wonderful happy ending for the entire family 💝
“In July 2021 my sister in law convinced me to get genetically tested. My husband is Sephardi and I am Ashkenazi and my mom had converted. The chances of us sharing anything genetically were so slim, what was the point? My sister in law put across a convincing argument and off I went to get tested. My husband and I had already started trying to start a family and I was not concerned these results would have any impact on our journey.
I remember standing with my colleagues at work when I got a message: “I have your results. When can you have a call?”
Okay. Deep breath. A lot of my family members are Tay Sachs carriers so I suspected that was the likely culprit. Not great news but not earth shattering either.
I am a carrier of 3 genetic conditions: Tay Sachs, Canavan and the whopper… Fragile X. I didn’t really understand what that meant at the time, but my husband was on call at work during our zoom call with Kara from Malka Ella and I so clearly remember seeing his face drop. That’s when I realised my life was about to change.
He started asking rapid fire questions and I felt like I was hearing him from under water. But a few words were clear: syndrome. High likelihood. Fertility. IVF. Urgent. What?
Without going into my deep google search history: being a carrier for this condition meant that I had a very high chance of having a child who would suffer from this life altering disease. It also meant that my personal fertility was at risk, with terms like “reduced ovarian reserve” and “premature ovarian failure” now being at the forefront of my worries since that day. I had dreamt of being a mom since I was a child. How could it be possible that this would not be easy for me? Kara said I had an appointment with Dr Yossi Unterslak at Vitalab in 2 days’ time.
Since that day, I have undergone a hysteroscopy, 3 egg retrievals, multiple scans and blood tests and finally: one embryo transfer.
1 year. 63 eggs retrieved. Endless tears and bad news. 1 healthy embryo.
In truth the numbers are dismal and the reason for this could make up a whole second post. But it proves what people in this community told us time and time again: you only need one.
IVF is a crazy process. The timeline is actually very quick and so there’s not much time to process everything you’re going through (cue delayed PTSD and the need for months of therapy). IVF is full of hope and heartbreak. It’s a time where the only real option is to turn to Hashem, and to put all your trust in Him.
With a full bladder and hopeful hearts, we transferred our healthy embryo today one year ago - on the 20th of June 2022. Two weeks later we got the call from Yossi: “do you know you’re pregnant?!” (Side note: Dr Yossi is an angel from Shamayim and I still feel like the only way I can appropriately thank him is to actually gift him a car/plane/small island). Since then, I have simultaneously whooped in joy and held my breath every second of every day.
A lot of thought went into whether or not I should share our story. Every story is so vastly different and one persons struggle cannot compare to another. But. I decided to share this because throughout this year, my Facebook and Instagram was filled with pregnancy or birth announcements that, while beautiful, felt like a gut punch. Finding posts about people going through IVF and experiencing similar feelings and symptoms felt like a warm hug during a really sucky time. If you are going through IVF or difficulties with conceiving in any way, please consider this a giant hug from me. IT IS HARD. But you’ve got this and your time is coming. Hashem has a plan.
Also, the most important reason we decided to share: If you are Jewish and want to have kids, now or one day faaaar in the future. Whether you prefer your fish Moroccan or Gefilte. GET TESTED. I promise you, your future kids will thank you for it. Malka Ella is an incredible organization that has made it so accessible and so easy. There’s no excuse.
If conceiving has been an easy or a devastating process, please be sensitive to everybody around you. This journey has taught us that you never know what somebody is going through and the truth is, it’s very likely many people you know are struggling.
❤️ thank you HaShem.”
#ivf #Taysachs #fragilex #canavan #infertility
“In July 2021 my sister in law convinced me to get genetically tested. My husband is Sephardi and I am Ashkenazi and my mom had converted. The chances of us sharing anything genetically were so slim, what was the point? My sister in law put across a convincing argument and off I went to get tested. My husband and I had already started trying to start a family and I was not concerned these results would have any impact on our journey.
I remember standing with my colleagues at work when I got a message: “I have your results. When can you have a call?”
Okay. Deep breath. A lot of my family members are Tay Sachs carriers so I suspected that was the likely culprit. Not great news but not earth shattering either.
I am a carrier of 3 genetic conditions: Tay Sachs, Canavan and the whopper… Fragile X. I didn’t really understand what that meant at the time, but my husband was on call at work during our zoom call with Kara from Malka Ella and I so clearly remember seeing his face drop. That’s when I realised my life was about to change.
He started asking rapid fire questions and I felt like I was hearing him from under water. But a few words were clear: syndrome. High likelihood. Fertility. IVF. Urgent. What?
Without going into my deep google search history: being a carrier for this condition meant that I had a very high chance of having a child who would suffer from this life altering disease. It also meant that my personal fertility was at risk, with terms like “reduced ovarian reserve” and “premature ovarian failure” now being at the forefront of my worries since that day. I had dreamt of being a mom since I was a child. How could it be possible that this would not be easy for me? Kara said I had an appointment with Dr Yossi Unterslak at Vitalab in 2 days’ time.
Since that day, I have undergone a hysteroscopy, 3 egg retrievals, multiple scans and blood tests and finally: one embryo transfer.
1 year. 63 eggs retrieved. Endless tears and bad news. 1 healthy embryo.
In truth the numbers are dismal and the reason for this could make up a whole second post. But it proves what people in this community told us time and time again: you only need one.
IVF is a crazy process. The timeline is actually very quick and so there’s not much time to process everything you’re going through (cue delayed PTSD and the need for months of therapy). IVF is full of hope and heartbreak. It’s a time where the only real option is to turn to Hashem, and to put all your trust in Him.
With a full bladder and hopeful hearts, we transferred our healthy embryo today one year ago - on the 20th of June 2022. Two weeks later we got the call from Yossi: “do you know you’re pregnant?!” (Side note: Dr Yossi is an angel from Shamayim and I still feel like the only way I can appropriately thank him is to actually gift him a car/plane/small island). Since then, I have simultaneously whooped in joy and held my breath every second of every day.
A lot of thought went into whether or not I should share our story. Every story is so vastly different and one persons struggle cannot compare to another. But. I decided to share this because throughout this year, my Facebook and Instagram was filled with pregnancy or birth announcements that, while beautiful, felt like a gut punch. Finding posts about people going through IVF and experiencing similar feelings and symptoms felt like a warm hug during a really sucky time. If you are going through IVF or difficulties with conceiving in any way, please consider this a giant hug from me. IT IS HARD. But you’ve got this and your time is coming. Hashem has a plan.
Also, the most important reason we decided to share: If you are Jewish and want to have kids, now or one day faaaar in the future. Whether you prefer your fish Moroccan or Gefilte. GET TESTED. I promise you, your future kids will thank you for it. Malka Ella is an incredible organization that has made it so accessible and so easy. There’s no excuse.
If conceiving has been an easy or a devastating process, please be sensitive to everybody around you. This journey has taught us that you never know what somebody is going through and the truth is, it’s very likely many people you know are struggling.
❤️ thank you HaShem.”
#ivf #Taysachs #fragilex #canavan #infertility
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