Orthostatic Hypotension (Postural Hypotension)

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This video gives a brief overview of Orthostatic hypotension aka Postural hypotension.
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I was diagnosed with "neurogenic orthostatic hypotension" about six months ago and was told it was a form of dysautonomia. I can stand as slow as possible and still either have near-syncope or actually pass out. It's taken me ten years to get this diagnosis. I've had so many concussions because I will pass out or can't catch myself and safely get myself sitting or laying before I lose consciousness. Kept being told over and over "it's normal for someone your age and size"... I started seeking a diagnosis when I was 23. My blood pressure on its own is rarely over 90/60, just chronically hypotensive to begin with and doctor's just told me for 10 years to see a therapist and passing out all the time is just normal. Since my diagnosis, I've tried 30-40 thigh highs and an abdominal binder, been on fludricortisone, taking salt tablets, mixing my water with electrolyte powder, eating smaller but more frequent meals, but nothing has really worked. And trying to find more info on this is hard when all of the dysautonomia spaces seem to actually be POTS spaces with some others sprinkled in occasionally. I'd LOVE more info to be easily available for orthostatic hypotension, because nothing I've tried has had any significant positive effect.

syenite
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I was diagnosed with Orthostatic Hypotension (OH) a year and a half ago (I was diagnosed when I was 25 years old, 27 now, and became symptomatic on April 8th, 2023 with Pins and Needles Feeling in my legs and feet, Lightheadedness, Dizziness, Presyncope, Chest Pain, Shortness of Breath, Heart Palpitations, and Fatigue). What caused me to get Orthostatic Hypotension (OH) was Vitamin B12 Deficiency due to a virus that I caught on December 9th, 2022 which led to me being bedbound for 2 weeks. The only treatment I was given was to increase my salt and fluid intake, wear compression garments, and exercise. What has helped me is increasing my salt and fluid intake, wearing compression socks (20-30 mmHG due to sensory issues), standing up slowly, squatting down if I have to pick something up from the floor instead of bending down at my waist, crossing my legs if I'm going to be standing or sitting for a long period of time, eating smaller but more frequent meals, taking Ibuprofen if I get a headache, taking Tums if I get GI issues, and floor exercises like Planks.

ChronicallyJuan
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I have delayed orthostatic hypotension, but Midodrine has made an incredible difference for me!

tessab
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I think I've had this since I was a kid, doing burpees lowered my pressure so much I had to lie down. At one point in a gym I was instructed to do a back exercise which required me to literally tilt my back down and then up multiple times, and I passed out, even though I didn't do that much effort. Then last year I started going to the gym again, and deadlifts and squats (particularly squats) lowered my pressure so bad sometimes specially when it was hot, I had to lay down multiple times to get back in shape, thankfully I didn't pass out again only that one time. A wonderful doctor, and I say wonderful because I've been to other doctors and said it was normal, measured my blood pressure standing up, then made me lie down for 5 mins, then had me stand up and measured my blood pressure again, and she said there were more than 20ml of mercury difference (from 120 90 to 90 60 I think it was) so she instructed me a month ago to do a tilt test and I already had a cycle ergometry and blood and urine tests done, and those results look fine, but still I need the tilt test. I guess that after the test I will know what type of orthostatic hypotension I have? I see there are a few types.

magne
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My wife is currently in hospital for the past 2 weeks with this condition and she is no better

CraigWilson-ye