Dr. Nimish Mittal: Advancing the Clinical Practice of EDS in Canada - Current and Future Directions

The ILC 6th Annual EDS & Chronic Pain Conference

The ILC Foundation
Support for parents of children, youth and individuals with EDS and Chronic Pain.

[Bendylife]

I just got diagnosed by my doctor in Vancouver but was then told there is zero support and we can't get genetic testing because all my doctors referrals will be rejected. I hope more support comes to BC soon. I don't know what to do at all and feel so lost.

[amandamccallum]

I was diagnosed with EDS by the head cardiologist at Hamilton hospital along with the neurologist there. They sent the diagnosis back to my family Dr and she literally Googled it in front of me, she has no idea what it is let alone how to help me.

I live in waterloo region and am desperate for a doctor who knows what EDS is. Can anyone point me towards help???

[SpiritedSandra]

I believe that "THIS Is What "I" HAVE!! OMGG!! How to get a referral to see you! I kind of have a Neurologist/my Physician closed her practice for a few years now and on the waiting list, and not sure...hoping to pull stings, so much to share (my Neurologist is Dr. Evan Lewis) and living with much pain/deterioration, etc.~ A life long issue, worsening over the years...If anyone has any positive/informative information for me, please comment, no negatives "Please" and Thank You!" :) Namaste

[QabalisticBass]

He ignored the opinion of a literally dozens of other doctors and told me I didn't have EDS. Never called me Dr. despite being reminded several times I have a PhD in Neuroscience, was incredibly arrogant, and seemed to believe that medicine is science. Medicine isn't even remotely science. It's the furthest thing from objective. Don't hope for any improvements in EDS care in Canada from this guy.