Rare Syndrome growth delay | Cornelia de Lange Syndrome

Freya has a rare syndrome called Cornelia de Lange Syndrome. It drastically slows her growth. In this video we look back at her life and how she has grown. As well as celebrating a new growth milestone!

[lynnparrish]

She’s a nicely-proportioned, growing little cutie.
Most importantly, she’s engaging with her environment, which bodes very well for future cognitive growth!
And feeding herself at age 1–wow!

[tracyfinch]

Adorable shirt, Jesse! You got so tall, Freya! ❤😊💯😍

[brucemcgowan]

Frey's a very, very special gift and blessing from God xoxoxo ❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

[karenligus]

Freya's baby pictures are adorable. All of your kids are so sweet with her. Liam making her laugh. Jesse letting her play with her shirt and Fiona reading with her so patiently. They all take such good care of her. She's eating and growing with all the love around her! Thank you so much for sharing. Your videos always warm my heart!❤

[barbhelle]

Freya has always been so cute.
It is fantastic that she is growing so much.

[paulabarton]

Great job Freya you rock kiddo keep up the great work. Well done to you and your husband Marcy. Awesome to see how far Freya has come

[KeepingItHopeful]

Freya is the absolute cutest. So tiny and mighty.

[denisewilliams]

Thank you for sharing Marci. The growth chart took me back when my twins were growing. Adorable pics of Freya growing. I’m glad Jessie had a good week of school. I had wondered how she faired attending all day instead of half day. Hugs from Texas💜🤠

[suemuster]

Love her baby pictures. She is still as adorable now as she was as a baby. Glad she growing so well. ❤❤❤❤

[amyb]

Freya is growing so nicely! She’s so pretty and petite, just precious. I really enjoyed seeing the photos from over the years, thank you for sharing these, Marci! You have a wonderful family. Sending you all my love and hugs, God bless you all! 🤗🙏❤️🥰

[Angela-zpgy]

Yay girl!!! 20 whole pounds. My dad used to say "ive bought turkeys that weigh more" I was a slow grower and very petite. Only 18 inches and 5.5 lbs. at birth. Shes just a cute little peanut. Bless her heart. Thanks for sharing your wonderful family ❤❤❤

[tdecker]

Love to see her growth, and the growth of our other little friend Sebastian. She’s being so well loved and cared for!

[dollfactory]

Wow Good job Freya and Happy early 4th Birthday 😊🎉🎊🎂 You and Chris have 4 awesome, sweet & bright kiddos! Thanks for sharing your family with all of us!!☺️☺️☺️

[hildacardenas-cnpu]

Oh Freya was so adorable as a baby. All of the kids were and still are. I’m glad she can eat an her own 👏🏼 Freya you’re doing an job.

[TaraLee]

So wonderful to see Freya growing and thriving! And to see the love that is shared amongst all the siblings is so heartwarming, Marcie! You and Chris are as blessed to have amazing kids, as they are to have you as parents!

And Jessie, Lily’s Purple Plastic Purse is one our family’s favorite books! Enjoy, sweet girl!

[TCU]

Go Freya! What a wonderful thing to see her growth! YAY Freya videos ROCK!!!

[pattijareo]

So awesome to see Freya standing up like that! It's gonna happen! 😁❤❤

[patriciaharkin]

Beautiful pics/videos of Freya. She's an amazing little girl with an amazing family.

[kathykupanoff]

I loved this so much. Our mama hearts never fail to ache a bit when we look back at our sweet little babies - and their very loving "little siblings". We love to see them grow, but ...😪
Anyway, I'm sooo happy about Freya's growth!! Woo Hooo 🎉👏🏼🙏🏼💝. Yay for her! And yay, too, for Jesse who's obviously so thrilled with "all day school"!

[barbg]

Freya is doing so well! The chip on the scale -> 🤣Thanks for the laugh, Chris!