A Woman Turning to Stone and Bedridden (But Still Happy)

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Ashley's muscles and tendons have slowly been turning into bone her entire life due to a rare condition known as FOP. At age 42, she is bedridden and unable to move. Ashley is grateful to still be alive and wants others to know that, "This life is precious and short so you need to enjoy it while you are here."
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Reminds me of the man with an iron lung. My heart goes out to her, makes you feel grateful for what you have.

NieceyWeesey
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She said "obviously I'm adopted" right after I thought that they look so alike❤

saftis
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The thing I find so sad is that the answer of everyone on this channel is always; "I'm just a human being". Which means many people, apparently, react negative on their appearance in the general public.

VincentGroenewold
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I have FOP too, and have met Ashley several times. She's amazing and a wonderful soul. This disease sucks but you've got to make the best of the life you're given. Her mom is incredible just like mine. Love you, Ash, hope to see you again soon!

Peelios
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I’m in bed pouting like a child over the end of a bad relationship and you’re remaining a smiling bad ass! You are amazing.

DrakulaBambaataa
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holy shit this woman is so much stronger than most people who have ever existed

nathanempty
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Awww Im so glad to see Ashley again, even if she is bedridden now. Bless her.

fraserkatie
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She said "obviously I'm adopted" but when the mom first came on screen I thought they looked so much alike.

mirandastephens
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Ashley, the most positive person ever with a beautiful Mom. Love and hugs to you both.❤

Happytimes
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Ashley is a wonderful lady. I would love to have her as a friend. I have never seen a bedridden person so full of life and so vibrant 😊

JenneferTinsley
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FOP affects only about 400 Americans a year! Median life expectancy is 56 years. I saw a new FDA (first one ever) was approved in 2023 for FOP. The drug, palovarotene, reduces ossification of connective and soft tissues. I was so happy to read about this since this condition is ultra-rare.
What a beautiful soul ❤ ❤

JustMyOpinion_
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This woman is the definition of "look on the bright side". She's awesome!

mandyb
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“They weren’t old they were my age” love it !!!! ❤❤❤ she’s blessed to have a mother with a great sense of humor and a nurturing heart ❤️

Sohollywood
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I’ve followed Ashley’s story for yikes 15 years? Since I learned about FOP. She was one of my inspirations to study genetics. I’m so glad to see her still going strong!

alyssa
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What an amazing woman. Her mother is amazing too.
This is humbling to say the least.

casualobserver
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"She's been my number one human my entire life."-Ashley "I like that"-mom. I like that too...what a beatuiful relationship they have!!

louise
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She should write a book. I want to be her friend.

claudiarobinson
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What an amazing woman. Her mum is also an angel. Takes a special person to be a full time carer

bloodyhellism
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Someone who struggles with a disease that slowly losing my sight. Hear your life story and how you still dealing with life. The positive attitude you have is such a fresh breath of air cause I feel the same way as you. Thank you so much sharing your story.

trolllover
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I loved that she casually mentioned that anti depressants have a very critical use during traumatic or difficult periods of our lives. I am so grateful for how lexapro helped me past some of the worst months of my life ❤❤❤

alexishayman