David Tuller presents The PACE Trial on Trial

The PACE Trial on Trial, presented by Berkeley public health academic & journalist David Tuller on Sunday April 15th, 2018 for ME/CFS and Lyme Association of WA Inc.

Further reading

Index to contents:
0:00 Introduction
1:20 David's Introduction
7:12 Big Questions????????
9:05 History
15:18 More than 20 case definitions
17:54 IOM and NIH Reports: 2015
21:33 PACE Trial: “Definitive” study of CBT/GET
24:54 Biomedical Research Efforts
27:20 CBT/GET/Biopsychosocial Research Efforts
28:15 PACE Trial
34:36 Expert Responses to PACE
37:28 Sharpe and Horton on Swan’s ABC show, 2011
40:50 My 15,000-word expose, plus follow-ups
41:43 After Virology Blog series
43:56 A Few Reasons for Concern
46:50 Outcome Switching in PACE
50:18 PACE Answers to Outcome-Switching
54:53 PACE Trial did not obtain INFORMED consent
57:01 PACE Answers to Lack of Informed Consent
59:01 Participant Newsletter: Dec 2008
1:00:27 PACE Answers to Newsletter
1:02:23 Is PACE an example of research misconduct?
1:03:47 Conclusions About PACE
1:06:16 Cochrane Reviews
1:09:36 Response to Controversy
1:13:40 Acknowledgements
1:15:52 Credits

[greggus]

Everyone with this terrible illness owes a big debt of attitude to David Tuller.