Crowdfunding video for Research into Mal de Debarquement Syndrome

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We are closer to finding effective treatments than ever before, help us conduct cutting-edge research that aims to further our understanding of the pathophysiology of MdDS and find a cure for this debilitating condition!

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This is astounding to me. I have had these symptoms for more than 20 years! This is the primary symptom I shared with medical professionals when describing my balance problems. When they asked what my primary complaint was, I said " I always feel like I am on a boat." I was diagnosed with a non-specific vestibular disorder.

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Dr. Mucci, I just got done watching your video and reading your article. So glad this research is going to happen!!! I have had MDds for 5 years now. Started when I was 22 years old. For some reason, everyone has treated me like I was crazy when I told them it was worse around my period.. you are onto something! I do have a question for you though, my next step was going to be possibly to start taking some type of birth control pill to help stop hormone fluctuations and hopefully subside symptoms throughout the month. Have you ever heard of this helping anyone? Or does this actually sound like the wrong route? I am desperate at this point. This was my next step, after a migraine (Topiramate 1.5 months in) doesn't seem to be helping at this point. Thank you so much for any advice and of course the AMAZING research that you are doing! Can't thank you enough!!!

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