#009 What is Complex Regional Pain Syndrome (CRPS)?

CRPS is an urgency in pain medicine. It is a pain syndrome that affects some people usually after a fracture of hand or foot. Besides pain, there are also other symptoms of colour and temperature change, with swelling and weakness. People with CRPS are better helped by a team consisting of various professionals (multiprofessional pain clinics)

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ALERT: This video is not intended to replace medical
advice. If you think you have a condition that is
causing you pain, please consult with your doctor
to get a diagnosis and a treatment plan for you.
The intent of this video is only for educational
purposes.
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[xSoulCreationx]

As somebody living with CRPS I am very grateful that a medical professional has taken the time to create such an educational and well spoken video. Thank you! I am happy to have found you on Instagram.

[BlitheApathy]

OMG thank you, I have CRPS and before I got the solid diagnosis my life was a literal hell. During the beginning of the "war on opioids" I was treated allmost subhuman by nurses an doctor's, one even called me a filthy drug addict. I've been called that so many times I stopped counting.

I hope more research is done on this and it's great to keep raising awareness of this brutal condition. And to unvilify those taking pain meds to manage the condition.

[reneerichardson]

I am continuously searching for my chronic pain. And once you said it was in limbs, I knew I didn't have to hear anymore. And usually one side.. that convinced me that I don't need to research this anymore. Thank you tremendously

[cherylrawlings]

I have been dealing with this for 21 years. I am now confined to a hospital bed for 18 years. Mine was brought on by broken wrist.
My symptoms burning, feeling as if a knife is being stuck in the bone.
All the symptoms listed I also have.
I wish this on no on. I do take opiods, along with other medications.

God bless those who are dealing with this.

[labrown]

I have CRPS and started which in hospital with Covid, getting up on my own in the hospital, and both feet start swelling the next day. My continuous complaint is mostly about right foot. I thank you for the education which husband discovers and now believes I am not crazy. My mean goal now is speaking to someone, pain control, water therapy, and now a foot doctor. I feel with this brief education it is possible for me to move forward. I am praying for a full recovery.

[official_ebuddie-rb]

I am a medical student and this video is a great summary of our lecture on CRPS. Thank you!

[TheGreenTuna]

I was just diagnosed with bilateral CRPS that I’ve dealt with for 15 years. I was misdiagnosed several times, had 6 surgeries that were never going to help and made everything far worse, and nobody ever mentioned CRPS. I have attempted suicide a couple of times due to this disease. It has completely ruined my life and I’m really hoping I can find even a little relief from treatment.

[genscidulac]

BEST VIDEO IVE FOUND thank you, gonna see a pain doctor and want to ask about nerve block and topical. opiods have such a bad stigma im afraid to go near them. its bad enough no one believed my issue for 10 plus years, and now i'm in a leg brace and can't even sit up long. Gaslighting had me in a bad place, and prolonged my diagnosis, but not even knowing what to look at as far as treatment goes is scary.
Dry needling in physical therapy helped me the most so far

[poeticstud]

My daughter has suffered from CRPS for 7 years which has been horrific to say the least! She has tried mand meds, procedures over the years which did not help. Thank God she has been taking medical marijuana and her nurologist gave her Topomax and it is working to treat the pain! I wanted to share and wish you all the best in treating the pain of this horrific disease! God Bless you all!!🙏🙏🙏

[lisawambolt]

Happy to see you are addressing CRPS. I was diagnosed after trauma to my left upper extremity. However, you stated it’s rare for CRPS to leave original limb. In other words, it’s rare for the CRPS to spread. Not true. I have had CRPS spread from my left upper extremity to the right upper extremity. I had a retrauma to the left upper extremity and the CRPS spread to my left hand then the right. My team called this a mirrored spread. After joining many Facebook groups, spread is way more common.

[dietersteindamm]

Thank you very much for your comprehensive and enlightened information. It was very helpful.

[maryevans]

My friend has been suffering from this horrible disease for over 3 years and there seemed to be no help out there beside ketamine that made her extremely sick. She went to Itay some years ago for a treatment that is not available in the USA and has been in almost complete remission ever since! To everyone out here dealing with this monster on a daily, do not lose hope EVER.

[emrem]

Multiple doctors keep punting me and try to label me as having CRPS. Except I have scans showing a fracture and possible avascular necrosis in my big toe AND almost NONE of the symptoms of CRPS. I am so tired of doctors not wanting to solve my problem and just labeling me as having a pain syndrome. CRPS sounds absolutely debilitating, and I simply do not have it.

[dadtype]

I have type 2 CRPS, and mine spreads. This pain sucks, it's constant and so horrible I never knew this level of pain could exist.

[rdeh]

Unfortunately it took 2 years before worksafe got me into a pain clinic, my left arm I ended up with crps formerly known as rsd, my was caused by a doctor removal of the wrong ribs for a thoracic outlet syndrome surgery, he caused damage in my brachial plexus so now I have crps, tos, and also a wing scapula as the nerve he cut caused the muscles around the scapula to die. My skin would blister , turn bright red glossy, hair growth nail grown, paper like skin, the burning is so bad . For me to lower my pain do I could function to a 6 to 7 out of 10 I got a implant plus I take metadol which helps but the burn is always there but I can now at least live a better quality of life,

[LifeAndLens-tt]

I enjoyed watching your video. It was quite informative . Thanks for sharing and all the best in your practice.

[delphinium]

Although I was not given an official diagnosis for my excruciating pain condition very many years ago, I believe this is what I was suffering from. I had a giant cell tumour in my knee joint some 13 years previously which had led to a very disabled leg. It developed severe osteoarthritis which then led to a long-stem knee replacement. At the six week check up it was only bending 20 degrees. It would bend under anaesthetic. I spent five weeks in hospital screaming day and night, even the slightest touch anywhere on my body was intolerable and I had an epidural for some days. The pain was so bad that I felt it was not compatible with life. The pain was worse than childbirth but there was no end to it over very many months. It took two years to get on top of but the hugely swollen knee has remained over the decades. I was told at that time that my brain had become used to guarding the disabled leg and that they only saw a leg like it every 10 - 15 years. It has been most interesting to see a description of a condition which seems to fit the pain and symptoms I experienced at the time. Thank you for the presentation.

[homemadehorsepower]

I have full body crps. It's so horrible. It destroyed my perfect teeth. I have to urinate every 15 minutes while trying to sleep. I can go 9 days with 0 sleep. I never sleep more than an hour when i do finally fall asleep. The pain is indescribable and never lets up. I've been in excruciating pain for with crps for 12 years now after a failed spinal fusion. Doctors act like im faking the pain and brush me off. I can't work. Can't work out. Can't go on vacation. I've literally been bedridden for the entire 12 years so far. Nothing helps the pain except strong opiods and no dr will prescribe them for me since my dr unfortunately passed away. I've literally died since it started, and i am just existing now.

[AmethystWoman]

Thanks for this video. I've had crps for 42 years. They didn't know much about it then but the doctor who did my back surgery did. I woke up from surgery with a big, red, swollen, burning foot. I had a spread to my other foot about a decade ago when I fell and had a soft tissue injury. So, kind of type 1 and type 2. Have you talked to many who have had a spread due to covid? I ended up with a severe spread apparently due to increased cytokine levels. I had a very mild case but am a long hauler. (1.5 years.) I don't know of anyone else who has had this for 42 years. my entire adult life. I feel fortunate to be allergic to all opioids.

[drpremlatasangwan]

Hello dr Andrea furlan, I am very happy to see your lecture on CRPS.
Actually 6 month back my daughter is doing excercise, she got mild pain in her left foot and then it started increase day by day.we visited many doctors and go through many diagnostic tests but after 5 month one Orthopaedician said that she is suffering from CRPS Now please share your best way of treatment, medicine, physical therapy, etc