Invisible Symptoms of MS

Originally posted by MS Australia on 30 May 2019.

Many symptoms of multiple sclerosis are invisible, or can be hard to notice. Sonia, a woman living with MS, talks us through an animation of the different invisible MS symptoms.
The video was produced in close consultation with people with MS, incorporating their own words.

This video was produced by MS Australia for MSIF's World MS Day.

[ThisGirlFromHamill]

My aunt has MS. I'm a teenage girl. We're really close. She is in a nursing home. I pray for her every day because of all the things she's struggling with. I've had to help her more times than I can count. I will always love and support her. I'm trying to learn more about MS, so I know how to help her.

[dianebosleytaylor]

Yes, yes, yes
I have been living with MS since 1996. I am 74 now. Sometimes I am grateful that my symptoms are invisible.
Other times it’s worse.
My NEED is to accept myself and forgive myself for having MS.
Fatigue and depression are getting worse.

[timeslime]

The skin sensitivity thing>yes! The ms hug is around my legs between knees and ankles. The factor of fatigue/exhaustion Infuriates me when others who are healthy complain of it after a long highly busy productive week, when I have debilitating fatigue from DOING NOTHING.

[eliamatich]

I don't have the symptom where I feel like my house is full of fleas, thank God

[robertlee]

I’m the odd case of MS. I’m a 68 year old male who was just diagnosed! Mine presented last fall when I developed optic neuritis in my left eye. I guess just because you’re not in the typical demographic doesn’t mean you can’t get it. Started a series of Rituxan infusions yesterday (I also have leukemia, that Rituxan should also help)

[viviandasilva]

I have all of these symptoms… I have for a while now, but I’m treated for mental health anxiety, insomnia I’m very sick and it’s getting worse.. pain, burning, pins and needles shock feeling on top of my head… the pain is almost unbelievable., , I didn’t have insurance before so, I couldn’t get diagnosed and nobody held ., , 😭😭

[AZMaybe]

If only we ms people could and would Unite with each other... spread love and just talk with each.
My own fam don't understand what I am going through.
Surely yours too are not.
I do not want to end up harming myself to death.

[Lesleylooz]

Its so hard to explain my symptoms here even in rl, my fatigue is extremely debilitating that focus is like a chore, walking is like a chore and a stair is like a constant challange-

[ioetrcq]

I have ms and i can understand all these symptoms😢

[marshmallow]

I have all these symptoms including drop foot. However, in America they won't diagnose you with MS without a spinal tap, which can leave you paralyzed if something goes wrong.

[susanpayne]

I am 68 years old and I can relate to all that.

[natalielundon]

You r Strong and Brave!!! Such an inspiration...Bless u🏵️

[Enigmatic..]

Ok, i have no idea if i have MS, to be honest i don't think i do, but. I always have a stiff or sore neck and back, my joins randomly ache and throb, i have twice now fallen from simply walking. All of a sudden my ankle will just give out causing me to hit the floor hard, it just comes out of nowhere. I also some times get sensitive patches of skin, normally on my arms that when touched feel like a few days old burn injury does. I tend to get cramp mainly in my legs from time to time but more than other people. If i'm walking up hill for too long i get an intense burning feeling in my shins, my leg muscles turn to stone and i can barely walk. All this shit could just be me getting old, who knows lol.

[gh-wtip]

thank you so much for this video, i will show this video to help me explain things :)

[georgemoussa]

Very, very true, you've summed it up well!

[jsantiago]

Omg definitely need to talk to my doctor

[joannamartinez]

I teally hope i dont have this. But i do experiance mostly all of these symptoms

[rebmedina]

Coping with the heat it what I struggle with.

[tiffanyj]

I have all these symptoms but was diagnosed with fibromyalgia 13 years ago. Now really getting worse after I got back from a over seas vacation but cannot get into the doctor for 5 months. No one believes me. Thinks I look fine but I can’t even lift my arms some days and constantly tripping on my own feet and just running into things. I feel like a prisoner in my body and no one believes me or is hearing me. 😢

[gillmahoney]

I dont have the skin or eye symptoms, I dont know if its M.S. or not. I have had trouble with vertigo, mi am usually tired sometimes exhausted, i have tremor which have had for years, have bowel problems, cannot go loo even thr matter is soft i can hardly😮 empty my bowel, same with bladder, can so some maybe not feel like it all day. If I wait I do more but never feel empty. I had many falls seem to have passed through that despite being wobbly, feel ill most of the time. Long ago had anhead xray which came out black, thry said no sign. Never had spinal tap or other investigations, have been left to it. I am77 andnhave had M.E badly thirty years ago, of was it? This doesnt seem like old age related symtoms. Husband doesnt want mr havung spinal tap doubts its M.S. but as bowel and bladder get worse I wonder.