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Diagnostic Journey & Impact of a Rare Disease Diagnosis Part 2
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Marlene Botta and Ashlin Veselka discuss their journey to diagnosis as the mother of a daughter with a rare disease and as a patient, respectively, at Rocket Pharma’s Rare Disease Day 2020 event.
Marlene, regional volunteer leader of New York for NephCure Kidney International, discusses how her 14-year-old daughter’s rare kidney diagnosis has changed the lives of their family.
Marlene, regional volunteer leader of New York for NephCure Kidney International, discusses how her 14-year-old daughter’s rare kidney diagnosis has changed the lives of their family.
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