Research Roundtable: An Inside Look at Exciting HHT Clinical Trials Underway

Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD (Overview) provides an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial), and Brian Mangilog (Rare Genomes Project) share more research projects and the potential impacts for patients. Advancements in research are not possible without the participation of patients. These various studies range from drug therapy trials to tissue donations and genetic testing. The webinar concludes with a 30-minute Q&A session with the panel.

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How can I get to you for drug trials? I have a severe form of the disease, confirmed - Randu-Osler, nosebleeds(for many years), and my daughter, who is 10 years old, has the same. I went through many operations, but nothing helps. I'm very worried about my daughter