Unmet Needs in the Treatment of Narcolepsy

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Sleep experts discuss unmet needs surrounding the treatment of narcolepsy, including the need for more medication options to give patients a choice and for medications that treat nonspecific symptoms and cognitive issues.
  1. NeurologyLive
  2. peer exchange
  3. sleep disorder
  4. narcolepsy
  5. michael j thorpy
  6. alon avidan
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Your peers don't treat it well or appropriately. THAT, is the biggest frustration. Even when I was FINALLY (after 2 decades of not knowing why I was falling asleep all the time and inappropriate times) diagnosed, the doctors were skittish (At Best) at trying to treat me and reduce the EDS/Hypersomnia aspect. Modafinil nor Sunosi helped me. At all. Both taken appropriately and max doses met. 2 different doctors threw their hands in the air and said there's nothing else they could do for me. They did recommend Dr. Thorpy but his office doesn't answer the phone.
The worst part of narcolepsy is FINALLY getting diagnosed and then being told you're a difficult case and can't be treated.

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