All you need to know about MCAS with Dr. Weinstock

Mast Cell Activation Syndrome or MCAS is a debilitating condition where a patient continues to experience allergic reactions, such as hives, swelling, low blood pressure, difficulty breathing, bloating, and severe diarrhea. Dr. Weinstock talks about the symptoms of MCAS and how it can mirror and overlap with Postural Orthostatic Tachycardia Syndrome (POTS) and Ehlers-Danlos syndromes (EDS).

In MCAS, the mast cells, a big portion of our immune system, have a gene mutation and are unregulated to set off a cascade of immune and allergic symptoms. Pharmacist Jay Gill talks with Dr. Weinstock to educate us about MCAS, it's symptoms and potential treatments including low-dose naltrexone (LDN) and needed supplements like quercetin, probiotics, etc.

There is currently a fundraising effort for a documentary on Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos syndrome (EDS), and Postural Orthostatic Tachycardia Syndrome (POTS). Dr. Leonard Weinstock and Dr. Tania Dempsey lead it.
Please consider making donations to

[juliemonk]

I'm so grateful for all of these educational interviews on MCAS, and ive listened to you, Dr Weinstock, on the Mast Cells Matter podcasts as well. You've helped me get diagnosed with something I've dealt with my entire life, since infancy, and I'm newly retired. I'm beyond grateful. A million thanks from me. You've both made your lives count.

[qingdaogrrl]

CONGRESS NEEDS TO FUND RESEARCH into mast cells!!!

[sarahb.]

Nice to hear someone is going to make a film about the triad! Unfortunately lots of people have it. I think I do. I was diagnosed with EDS (hEDS I think but I have not seen the geneticist yet) and each time I eat the "wrong" thing I get very Potsy. So the allergies can give me pots. And unfortunatly I react to a ton of stuff including all corn derivitives.

A carnivore type diet of grass fed meat works the best in my case. And most places I cannot go due to smells.

[maryr]

Please ask Dr Weinstock to add Hypermobility Spectrum Disorder as well as EDS (Ehlers Danlos Syndrome) to the future videos. EDS and HSD are very similar connective tissue disorders...for which MCAS is found in both groups of patients. Dr. anne Maitland specifically notes HSD and EDS as being a commonality in the people she found MCAS in. It is important not to leave out the Hypermobility Spectrum Disorder.

[daniellerandall]

I have mcas I have over 40 intolerance and when they are triggered my body go’s out of whack big time in every way . I know how to help myself, unfortunately not many gp’s understand mcas but it’s very simple to understand especially if you live in the body of the person .

It’s the peoples stories you need to learn from .
I’ve worked on front line of disease for 30 plus years now and I honestly think mcas is so undiagnosed, I think lots of people are out there with it .
I went to an allergist who helped figure things out for me .

[jerryiwanski]

Awesome interview!!!!
I am definitely going to re-watch a few times.

[larryking]

GREAT GRATITUDE, TWO SUPER HEROS, SHARING IS CARING, WILL SUGGEST TO ANY PATIENT TO HAVE THEIR RX. SENT TO YOU, STAYMORESTRONGER, LARRY KING, LOVE, PEACE & NURSE. VENICE, FL, ME', SHARING WITH OTHERS. 😀

[rosssundberg]

Covid seemed to give me this type of a reaction. I’m 80% better but I really want to get rid of last 20% of these symptoms. I still can’t eat eggs or soy.

[beckabuff]

Doctor how can I be apart or your research group?

[qingdaogrrl]

Fillers are crazy bothering me these days, now that I've eliminated so many other things! Corn closes my throat.