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PSA for Juvenile Myositis 📢 (Recorded by the Ryan Family) - Join Bowl2CureJM Now!
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The Ryan Family recorded a fun PSA for the Bowl2CureJM 2018 thanks to our friends at KISS and JAMN FM in Boston.
Come on out and join us in our fight against Juvenile Myositis!
JM and it’s two sub-forms, Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), are rare and life-threatening autoimmune diseases in which the body’s immune system attacks its own cells and tissues causing muscle weakness.
The exact occurrence of JM is unknown, however approximately 2 to 4 children in a million are diagnosed with JM each year in the United States.
The average age of onset for JDM is between six to seven years old; 25% are age 4 or less.
To learn more about Juvenile Myositis visit our Website:
And don't forget to subscribe to the Channel and share it with your Friends who might also be interested in Liam's story!
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About Liam.
🏋️♂️: JM Warrior 👨👩👧👦: Loving Brother 🕺: Exquisite Dancer 🧠: Imaginative Thinker 🍵: Monstah Potion Creator
The Odds that you’ll be struck by lightning this year are 1 in 500,000. The odds of a child being diagnosed with Juvenile Myositis are the same.
On March 26th 2018 our-year-old Liam Hugo was diagnosed with an extremely rare and life-threatening autoimmune disease called Juvenile Myositis (JM). Our once active son had deteriorated dramatically within a few short months.
When he Began aggressive treatment for JM, he was unable to sit up, climb stairs, dress himself, or lift his own head without being in pain. Currently Juvenile Myositis has no known cause, no FDA approved treatments and no cure.
We’re on a mission to change that!
Although Liam's disease does not define him, it’s important that we share his journey to help raise awareness for undiagnosed children, plus form bonds within our global Juvenile Myositis family.
Liam has an incredible imagination. He enjoys family fantasy story-time, playing pirates with his little sister Olivia and LOVES video games like Minecraft and ROBLOX. Liam is also quick to make friends, has excellent manners and tells fantastic jokes.
“What do you call a cow with no legs? GROUND BEEF!
Follow Our Jourey - With your help to spread JM awareness, there is more opportunity for quicker diagnoses, better treatment options, and ultimately finding a cure.
Together we can CureJM4Liam
***********************
Follow Liam:
***********************
#FunPSA #Bowl2Cure #CureJM4Liam
Come on out and join us in our fight against Juvenile Myositis!
JM and it’s two sub-forms, Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), are rare and life-threatening autoimmune diseases in which the body’s immune system attacks its own cells and tissues causing muscle weakness.
The exact occurrence of JM is unknown, however approximately 2 to 4 children in a million are diagnosed with JM each year in the United States.
The average age of onset for JDM is between six to seven years old; 25% are age 4 or less.
To learn more about Juvenile Myositis visit our Website:
And don't forget to subscribe to the Channel and share it with your Friends who might also be interested in Liam's story!
***********************
About Liam.
🏋️♂️: JM Warrior 👨👩👧👦: Loving Brother 🕺: Exquisite Dancer 🧠: Imaginative Thinker 🍵: Monstah Potion Creator
The Odds that you’ll be struck by lightning this year are 1 in 500,000. The odds of a child being diagnosed with Juvenile Myositis are the same.
On March 26th 2018 our-year-old Liam Hugo was diagnosed with an extremely rare and life-threatening autoimmune disease called Juvenile Myositis (JM). Our once active son had deteriorated dramatically within a few short months.
When he Began aggressive treatment for JM, he was unable to sit up, climb stairs, dress himself, or lift his own head without being in pain. Currently Juvenile Myositis has no known cause, no FDA approved treatments and no cure.
We’re on a mission to change that!
Although Liam's disease does not define him, it’s important that we share his journey to help raise awareness for undiagnosed children, plus form bonds within our global Juvenile Myositis family.
Liam has an incredible imagination. He enjoys family fantasy story-time, playing pirates with his little sister Olivia and LOVES video games like Minecraft and ROBLOX. Liam is also quick to make friends, has excellent manners and tells fantastic jokes.
“What do you call a cow with no legs? GROUND BEEF!
Follow Our Jourey - With your help to spread JM awareness, there is more opportunity for quicker diagnoses, better treatment options, and ultimately finding a cure.
Together we can CureJM4Liam
***********************
Follow Liam:
***********************
#FunPSA #Bowl2Cure #CureJM4Liam