Rare Disease Day, 28 Feb 2018 Official Video

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Show your rare. Show you care.

28. február 2018 je jedenásty medzinárodný deň zriedkavých chorôb, koordinovaný organizáciou EURORDIS a organizovaný s národnými alianciami o zriedkavých chorobách v 25 európskych krajinách.

Deň zriedkavých chorôb je kampaň vedená od pacientov, ktorá spája milióny pacientov, rodiny, opatrovateľov, zdravotníckych pracovníkov, tvorcov politík a občanov so solidaritou - každý sa môže zapojiť!

Videá obsahujú pacientov a členov rodiny, výskumníkov a lekárov, ktorí ukazujú svoju jedinečnosť. Pripojte sa k nim a ukážte svoju podporu pre komunitu zriedkavých chorôb - #ShowYourRare počas mesiaca február na sociálnych médiách. Jednoducho postnite obrázok alebo selfie na akomkoľvek sociálnom mediálnom kanáli s vašou tvárou namaľovanou a s hashtagom #ShowYourRare, #MyRare alebo #RareDiseaseDay.
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