The Remarkable Story of CFS Unravelled: The Fibromyalgia, ME/CFS, POTS Book Changing Lives!

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In this episode of the Wisdom From The Other Side podcast, we discuss WHY the focus of the book CFS Unravelled is so key for people to recover from ME/CFS, Fibromyalgia and POTS.

Claudia asks how I came up for the hypothesis for the pathogenesis of the illness (the root cause of the illness), and we discussed why it has touched so many people so deeply. We also discuss some of the KEY points of the book, how the book unravels so many of the mysteries of this illness in terms of how people get sick and how they recover, as well as the endless list of symptoms.

Timestamps:
Introduction 0:00:00
Podcast Disclaimer 0:03:38
Podcast Beginning 0:04:20
Hi To Claudia 0:08:21
Dan & Claudia discuss how they met when CFS Unravelled went to paperback 0:09:41
What prompted Dan to write CFS Unravelled - his low points 0:06:19
Claudia asks about the motivation for writing the book 0:09:45
Dan discusses the challenges and process of doing the research 0:10:59
Claudia discusses how the foreword touched her & why the change in approach 0:12:44
Dan explains why he just gave such a severe answer about symptom treatments 0:16:34
Claudia talks about her symptom chasing experience 0:17:50
Dan asks Claudia about her experience with reading the book 0:18:20
Dan shares the emotional story of his first reader 0:19:28
Claudia talks about the emotional impact of reading CFS Unravelled 0:21:05
Dan talks about how his investigations led down different tracks & dead ends 0:23:56
Claudia shares a great analogy about Dan's process of investigation 0:27:18
Dan shares how real life experience of piecing things together was imperfect 0:27:54
Dan shares the difficulty in making sense of so many dysfunctions and his failed attempts to make sense of it all 0:29:01
Dan tells how he changed his approach to reach his conclusions 0:30:04
Dan shares how the book changed going into paperback 0:31:39
Claudia & Dan discuss the challenges of understanding and purpose of book 0:32:14
Claudia ask Dan to talk about the ANS role in CFS, Fibromyalgia & POTS 0:35:01
Dan talks about the connection between IBS, CFS, ME, Fibromyalgia, POTS, MCS etc 0:39:22
Dan talks about secondary dysfunctions and how they are caused 0:41:15
Claudia asks about how this illness is triggered 0:44:22
Claudia and Dan discuss why the illness perpetuates 0:49:54
Claudia discuss how ANS function normalises 0:54:38
Dan discusses the frustration of doctors given dysfunction opposed to non-functional 0:55:30
Dan discusses how the ANS explanation explains how people recover differently 0:58:46
Claudia asks Dan how people recover from the illness 1:01:49
Dan explains the limitations of 'mind-body' approaches for recovery of ME/CFS, Fibromyalgia, POTS & MCS 1:06:24
Claudia asks about the next step forward for people seeking recovery 1:12:12
Dan discusses his motivation for writing the book how a conversation with a Dr led him to follow through 1:13:46

For show notes, resources, and special offers regarding the book and other links visit here:

#Fibromyalgiapodcast #MECFSpodcast #MCSpodcast #POTSpodcast #recovery #neuroplasticity #chronicfatiguesyndrome #mecfs #fibromyalgia #POTS #CFSBook #FibromyalgiaBook #POTSBook #WisdomFromTheOtherSide

**MEDICAL DISCLAIMER**: Dan Neuffer, CFS Unravelled or ANS REWIRE do not provide medical advice, and the information available in this video does not offer a diagnosis or medical advice of any kind. The content is opinions and information presented for EDUCATIONAL PURPOSES ONLY, and MUST NOT be used as an alternative to a healthcare professional’s diagnosis and treatment. Only a physician or other licensed health-care professional are able to determine the requirement for medical assistance. Please seek the advice of your physician or other licensed healthcare providers if you have any questions regarding a medical condition.

[pamelasmith]

I really believe my fibromyalgia and chronic fatigue was brought on by stress. I was in a very verbal and emotional abusive relationship for many years and I was walking on eggshells all the time. I remember one day realizing that I was sitting at work gritting my teeth and holding in all this tension and stress. I have very severe fibromyalgia and also chemical sensitivities. I have had it for over thirty years now and I get new symptoms every year. It is now difficult for me to walk. I am going to read your book. I swim and walk as best as I can with a walker. I am desperately trying to get myself better. I just wonder if at my age of 77 it is too late to recover. I do have a supportive doctor, but she just doesn’t know how to help me. Thank you for this video. I found it very interesting. I have just been in a huge flare up for over two months. Today was the best day I have had in a long day. Just hope I feel the same tomorrow. ❤️🇨🇦

[jacquelinemetzner]

Thank you Dan for writing the book, and for still going on to support people experiencing cfs. I am always looking forward to a new Episode of this Podcast.

[peachesmcgee]

Just got the book.After 20 years of illness it's the best explanation I have heard.I had also done the Lightning Process and Gupta Techniques in the past but these techniques had never "stuck".The LP in particular was way too simplistic for me.There's something in the scientific manner of your writing and explaining all the symptoms that really clicked for me.Listening to your interviews has made me start afresh as I have always known deep down that my ME has been down to a dysfunctional HPA axis.Thank you for these interviews, they're really helpful.

[IceLynne]

You're an amazing person Dan and I'm so appreciative of your work and the help you've given people who have little hope. #MillionsMissing #MECFS #POTS #Fibromyalgia #MCS

[peachesmcgee]

Seen a few "accidental recoveries" over the years whilst helping to run our local group.They pretty much all check out with the ANS dysfunction theory.Interesting stuff - thanks again!

[chadvader]

Do you have any patients recovering or attempting to recover from Fluoroquinolone associated disability? As there is a big overlap in symptoms.

[laurencem]

Where can I buy the book you speak about?

[MySecretJourney]

New studies are pointing out PELVIC VENOUS INSUFFICIENCY being the main cause of POTS. Majority of women have recovered after getting coiled. I’m getting my MRI done this month plus an endoscope.

[ratfacekick]

I love Dan and his work, but he's still at the trunk of the tree. Lower still is toxicity from biotoxins. Mold and water damaged buildings. Combine avoidance and the ANS rewire program and you have the recipe for success. It's important to recognize that there have been many outbreaks of cfs in moldy buildings, royal free hospital and truckee highschool in lake tahoe being more prominent ones. They starter with a virus, but no one passed the disease to their families. Their ANS became disordered for a reason