Health Disparities and Parkinson’s: Inequities in Parkinson’s Research

When it comes to advancements in the care and treatment of Parkinson’s, research is a key component to inform and influence the way therapies are trusted, adopted, prescribed, and followed. But what happens when access to participation in research and even the design of investigations neglects to consider a diverse audience?

In this conversation between Jonathan Jackson, PhD, and Nabila Dahodwala, MD, we explored:

Why diverse participation in research matters
What researchers get wrong about designing and recruiting for diverse participation
What leaders in health disparities and Parkinson’s research are focusing on right now
What role research can play when it comes to changing equity and access to Parkinson’s care

[therealkathleenkiddo]

Thank you for tackling a controversial and often difficult topic with grace and nuance.

[sharonkaycomstock]

Thank you for this webinar. I was made more aware of Parkinson’s 20 years ago because of a friend who’s mother had it. I never thought I would be living with this Parkinson’s myself. I was absolutely looked at as a woman with anxiety and somatic and normal with a tremor. It definitely took time to get a diagnosis of likely Parkinson’s. And when I asked a question I would think a MDS would at least try to answer. I was told “I am a clinical neurologist you would have to ask a research neurologist that question” But really what doctor says that to someone they just told you likely have Parkinson’s? So I had to be the one to find the research neurologist. I have been my own advocate but how long do I have until I can not advocate for myself? I do like the idea of PCPs being apart of the research process.