Perspectives from a Neurologist Living with MS

A neurologist living with MS discusses how the team approach works at his comprehensive MS Center and speaks about what the future looks like for someone newly diagnosed or living with MS.

[exttras]

I was diagnosed with Multiple Sclerosis 4 days ago, I’ve never thought I’d catch something like this and my symptoms really sucked. The worst part of MS is when people ask me “how are you doing” or “how are you feeling” deep down inside we know we’re not okay but in the outside we look okay.

[Rucaneeguu]

I was diagnosed this past may so very recent. Been feeling scared beyond belief. Felt like life was over. But watching this gave me so much hope.🎉❤

[mesha]

Thank you for this video. Give us hope. I love the line: I got shot. When someone asks why are u limping? Life is a journey and MS is a speed bump.

[roberture]

Thank you doctor I needed that today. I was diagnosed 5 years ago and my journey has been a bumpy road since.

[mariankiely]

Oh that was fantastic- I was dx with PPMS 9years ago. On Ocrevus 6/12. Doing well - yes I've had 3/4 brief flares but I'm doing ok - best wishes warriors - onwards and upwards 🦋🌻

[priestessbrenda]

Dr Wade you will forever be a part of Steve and I's family. We miss you so much.

[michaelstevenson]

I have multiple sclerosis was diagnosed in February horrible disease. Thing that annoys me people saying look fine but would like to swap body for a while to show how it feels.

[rohinihyde]

Thank you Dr. I am listening to you lying in a hospital bed awaiting a lumber puncture test tomorrow. One of the diseases I am being checked for is ms. Your video gives me hope. Thanks again.

[LiamSeniorYT]

You can’t fight your purpose. It was meant to be! 🧡

[TH-ibzz]

As someone newly diagnosed with MS this video is very hopeful also Diego is a genius 😂

[BridgetMermikides]

I was diagnosed 2 years ago but I’ve had it much longer. Am on treatment now. Thank you for giving us hope!

[colleensmith]

Dr- thank you so much for your great insight on this disease. I was diagnosed in March 2022 and on Kesimpta & feel pretty great. I sleep way more than I did before & even dreaming again! I am 54 and feel grateful & hoping for the very best especially road cycling.
Look forward to your video's in the future. Best from COLO

[deborahjones]

I like this Dr and wish I could be seen by him..

[brandonwooliver]

I was just diagnosed with optic neuritis and have to have an MRI Tuesday. I'm really scared I just had a baby and my wife watched her uncle get slowly debilitated by MS. I'm scared for myself but mostly for my family. These videos help a lot knowing it's possible to live a somewhat normal life. Thanks so much

[listening]

All the best too you! That was an amazing story.

[ritahall]

The unknowns the ifs the cost the toll of physical and emotional issues relative to Ms are frightening

[tinahall]

I’ve been searching for an answer for going on 3 years now. My primary doc feels I have MS, as do I. I’ve had a rheumatologist test me for every autoimmune disease and it all came back except my ANA which stays positive. I have a “Dawsons Finger” lesion on the top right side of my brain. I have SO many symptoms. But every neurologist I see chooses to use the McDonald criteria to diagnose and it requires more than 2 lesions. I just need a neurologist who CARES and doesn’t use some criteria requiring more lesions.

[hellomynameis]

Hi, thanks for your story and insights. I have been having symptoms for 1-2 years. Off and on. Recently I had a brain, c spine, thoracic, lumbar and sacral MRI spine. Scanned with 1.5 Tesla without contrast. All came back normal with no evidence of lesions of demyelination. My dad has MS. I wonder if the scan was strong enough or if something was missed or if this is all in my head now, what do you think Steve or should I rule out MS? Thanks

[jamiemartin]

Why, after confirmed MS for 20 year's, do I suffer from groin debilitating pain muscle spasms, and what can I do.. I streach... But my Neurologistics retired...and my new nurse neurologist practitioner can't prescribe medication .. I feel helpless

[dkasper]

I understand, just wanting to know what's wrong.