CF Foundation | Reflections from Bryan Johnson

“There are so many organizations out there that are just…organizations. The CF Foundation is a family. You laugh, cry, share memories, and you look forward to opportunities. With every new technology, drug, and treatment that comes it gives you more and more hope. You can see the little things that happen and the impact of what you’re doing—it’s exponential.”

As we celebrate 65 years of progress, Bryan Johnson, who has a niece and nephew with cystic fibrosis, shares how he got involved with the Foundation and his hopes for the future.

[Lisa-pbqp]

Much love to you and yours. 💕 My only child, Tori passed from this horrid disease on Dec 30 2012 at the tender age of 23. It makes me extremely happy for the progress the CF Foundation has made. When our daughter was around 8 we became very aware of the need for awareness of cystic fibrosis and our duty to help her and those afflicted. My husband started the local chapter in our neck of the woods, Melbourne Florida. Love and hope guys!