Palliative Care at Children's Specialized Hospital

The Chronic Illness Management Program at Children’s Specialized Hospital is a comprehensive inpatient program for adolescents ages 13-21, who struggle to manage their condition. It provides the teen and family with a structured, comprehensive treatment plan to address medical, nutritional, psychological, and family communication issues. Since parents and caregivers have a crucial role in supporting their child’s health, we encourage parent/caregiver participation in medical education, nutritional and psychological counseling sessions to ensure the greatest success.
Children with chronic, life limiting, or life altering diseases may receive Pediatric Palliative Care. With input from the child and family, priorities and goals are set based on intellectual, spiritual, and pyschosocial needs, while medical needs are also being met.

The Chronic Illness Management Program is typically a four week program that follows a trans-disciplinary model and behavioral approach to care, that addresses the physical, emotional, and psycho-social needs of each patient. The goal for each adolescent is always to improve self-management of the disease.