Thoracic Outlet Syndrome: A Survey of Surgical Options

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Please watch: "NeoVista® MRI for Thoracic Outlet Syndrome: What makes it different?"
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Most Australian doctors are useless in reporting and diagnosing. Wish you could bring some expertise in Oz

annap
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Is there a TOS professional organization for MDs? Is it just US or worldwide? Do TOS MDs have a professional conference for learning new methods or advanced techniques or complicated cases? If you do, pls record the meeting. Please also consider making a presentation at the Ehlers-Danlos Society (and all ither groups (search in YT, they'll come up...Canada has a group, etc, Chiari group, Hypermobility Spectrum Disorder groups, POTS groups, etc) TOS patients seem to be similar population type (young, female, etc) of the diagnosed population but so many of people aged 40 and up have not been diagnosed. I suspect more people have TOS issues that might have been chalked up to hypermobility pain since no one could find an answer for us. Especially if you can get the ear of Dr Pradeep Chopra, a pain management specialist....since he is talking about pain...but nobody has identified where the pain comes from. Please consider approaching the societies to either add one of your videos to their playlist or join their conference. (EDS society has a registry of ppl with EDS/HSD, so if someone wanted to do a survey of registry....like survey if some people have symptoms or a diagnosis. Qualtrics survey would tally your results easily. )

maryr
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Dr Werden discussed contrast dye in veins....is there a natural dye vs a chemical dye because many EDSers have MCAS (mast cell activation syndrome) which means they tend to have reactions to chemicals, preservatives, adhesives, etc. (An example, I reacted to the ultrasound gel that was being used to monitor my heart. The gel had a baby powder scent and it was enough that I had a reaction to it. I get migraines from prolonged exposure to the scent. Prolonged is 10 min or more.) So just curious if you have non-chemical contrasts or adhesive to a suture.

maryr
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Someone mentioned that headaches are symptom of some TOS. Can anyone tell the difference btw migraines vs the headaches from TOS? I ask because I take Botox as a preventative med for migraines but it doesn't seem to work for me. I tend to have migraines everyday for two weeks following the botox. Neurology said that is not normal. Chemical scents, wood smoke, neck/head placement makes migraines more frequent...so wondered if Neurology has been barking up wrong tree so to speak...in looking at nerves. Which medical prof could I pursue TOS as an option...at least to eliminate TOS.

maryr