Fight For Sight | Help Cure Childhood Blindness

Lia was born with a rare genetic disorder - Usher Syndrome Type 1B. People with Usher1B are born deaf, without a functioning vestibular system and begin losing their vision as toddlers, eventually leading to blindness. As new parents we were devastated when she received this diagnosis at 3 months old. We are still struggling to comprehend the gravity of what we are facing as we try and raise our baby girl.

#savesightnow #usher1b #cureblindness