Stanford Hospital's Adult Cystic Fibrosis Clinic - Molly Pam's Story

Molly Pam, a senior at Stanford University, on living with cystic fibrosis as a child and making a smooth transition from seeing a pediatric physician at Packard Children’s Hospital, to getting regular care from a CF specialist at the Adult Cystic Fibrosis Center at Stanford Health Care.

[luciahlinkova]

she is an angel. she is so positive, at least she looks like it, and it gives me chills.

[ChrisVSCysticFibrosis]

Currently 32 and going strong, Staying positive is essential with CF. Keep up the good work, As people have said exercise really helps!

[staciemae]

My sister passed away from CF when she was 19. This is extremely hard to watch but I wanted to educate myself.

[cameliamarkham]

Be encouraged hon. I'm 62 years old with cf. I was just diagnosed this year. Keep a good exercise routine! It really helps:-)

[susieeverett]

My niece was diagnosed when she was just a few months old. She had a double lung transplant at 14 and had a good 2 years before her body started rejecting the new lungs and she passed away at 17. I admire your determination and strength. Carry on the fight...

[priscillavarela]

poor baby, such a beautiful girl, so heartbreaking

[ksterlings]

I met a girl recently I'm absolutely crazy about that has CF, I just wanted to hug her and cry hearing about what she goes through daily...
She gives me so much hell pushing me away but I know its because she cares for me and I always try to keep at it learning more about CF and keeping her motivated.

I'm so proud of her and fascinated by who she is and her life.
Always be respectful to others and grateful for you life.

[mouthspills]

i wonder how are these patients doing during covid. i hope they are doing all well...

[cocoputhyxo]

I came here after watching 5feet apart for the 2nd time and it’s just 🤯 to actually see a real person with CF instead of actors it is just OH WOW

[maryyork]

Molly, your grace and determination have helped me persevere today. You are inspiring.

[ThresaHill-dixz]

How is Molly doing now? It sounds like she is amazing and an example of what a positive outlook can give! Molly, I hope you are well and going strong. You go, Girl!!

[CFlifestyleFoundation]

Molly Pam's story is an inspiring one. She is truly a fighter who is striving to live strong! What a beautiful story. 💜💜💜

[dr.pragyanamdev]

She's so positive.. God bless her♥️🙏

[stevewilds]

I hope this beautiful angel is still with us, god bless her and you all - life is precious

[gumballking]

I have CF so i can say that it is very hard to have CF and see others having a normal childhood and having to explain CF to the class when you cough. And because nobody really knew about CF me and dad would take my compression machine for show and tell on the 1st or 2nd day of school and explain CF to them.

[DarrinsChannel]

Am getting tested for cystic fibrosis June 26/19 am 31 male and I hope my current lung doctor is wrong I know I have only 49% lung function and I have weight gain blood pressure problems and blood glucose leaves are saying am pre-diabetic and a ultrasound showed I have a fatty liver as well so I hope my tests come back navgtive for cystic fibrosis

[martinad]

Well done Molly :) You are such a beautiful, brave and smart girl. You deserve all the happiness in your life. Thank you for sharing your video. Wishing you all the best :)

[roxannemua]

Wow truly wish her all the best my physical health is somewhat okay. Ive have significant skin problems and eye issues and vision deterioration not going to lie i whine/complain a-lot about the hand i been dealt, its very hard to maintain a positive spirit and attitude. She truly is a happy positive soul truly wish her all the best

[JerubbaalgodSlayer]

I was diagnosed with CF at 38 and it’s been 14 years for me. I’m a patient of St. Michael’s Hospital in Toronto, Ontario, Canada where Dr. Elizabeth Tullis is the hands on Physician/Director in charge. I am unfortunately or fortunately (however you want to look at it) one of less than 5 black (Afro Caribbean) patients.

I inhale 7% hypertonic saline solution up until the past month or so Tobramycin, but they’ve since stopped that because I’ve developed tinnitus in my left ear. I’ve now been approved for Trikafta so I’ll be underground a sweat test and a CT scan in the next two weeks before I start those meds. Exciting times. Just a quick question, what mask have you found effective?

[megan-vzio]

thank god she still alive i reached out to her on insta