2018 PPMD Conference - Friday, June 29th - Afternoon Session

preview_player
Показать описание
LIVE POLLING
If you are a patient, caregiver, or family member

The 2018 PPMD Annual Conference marks the 24th time families, physicians, researchers, caregivers, industry partners, and those living with Duchenne have gathered to discuss all topics Duchenne.

This conference is like no other. Here, the key is community. All the pieces of this incredible community come together to learn, to listen, and to look forward at driving change. Every single voice is important, and every moment is rich. Now is the time for us to come together as a community and seize this moment.

The field is ripe with opportunity and at the PPMD Annual Conference partnerships are built, questions are asked and answered, and friendships are forged.

AGENDA

1:50 - Intro to the Session: Inflammation - Moderator: Abby Bronson

2:00 - Reveragen - Eric Hoffman, MD, PhD

2:20 - Catabasis - Joanne Donovan, MD, PhD

2:40 - Italfarmaco - Paolo Bettica, MD, PhD

3:00 - Mallinckrodt - Bryan Due, PhD

3:20 - Capricor - Deborah Ascheim, MD

3:40 - Q&A followed by Polling time #2 and then a Break

4:00 - Why Advocacy is more important than ever - Ryan Fischer and Annie Kennedy

Polling time #3

4:45 - Panel Presentation: Today’s Tomorrow: Looking at the future

Moderator: Pat Furlong

Panelists: Annie Kennedy, Abby Bronson, Jane Larkindale, PhD, Stan Nelson, MD, Kathi Kinnett

What is needed to move the needle in the Duchenne landscape? How is PPMD working to make this happen? (Topics addressed: Duchenne protein signature, Duchene Regulatory Science Consortium, PPMD’s Certified Duchenne Care Centers, Duchene Newborn Screening, Master Protocol, Duchenne Registry 2.0, and Preclinical Assessment Lab)
Рекомендации по теме