Resistant Chronic Myeloid Leukemia

[ttomboii]

i was diagnosed with CML now almost 4 years ago when i was just 16 years old. My white bloodcells were at 526.000 so i was rushed to the hospital and got chemo. I have tried almost every tki and they all ended up not working or have to bad side effects. I am now taking Asciminib wich wirks great and since last month my Bcr-abl is under 0, 1 wich is a huge milestone for me and calmes me a lot.

[raybraud]

I was diagnosed 2 years ago in June. Been on Gleevec and Imantanib. My BCR-ABL hovers around 20. I got this from the water at Camp Lejeune, NC in the 80s. The VA is providing my chemo free of charge. I have continual dull pain in my shoulders and joints, and I get infections very easily. The first time I did, I brushed it off and was hospitalized for a week, just before sepsis set in.

[AgentAO]

I have CML but I just hope the pharmaceutical companies would lower their prices. The no.1 reason for non-adherence for many CML patients is the affordability of these heavenly-priced tki's..

[reisebi]

I'm also cml patient.. this is inspired to me...

[DogHairDontCare]

I was diagnosed with CML this year. In my case, I had a crap load of symptoms in the chronic phase and I probably was getting ready to enter accelerated phase because things got really rough all at once. It was suspected I had it for many months, even up to a year, prior to being diagnosed. I also had some bad sideffects to my TKI -- the first month consisted of 16 hour long headaches every time I took it, and shortness of breath is still an issue. There are other risks, but when you stand back and consider that this illness used to be a death sentence, we've come a long way.

[Learn_withMk]

I have been diagnosed with chronic-CML and taking imatinib 400mg but my upper eyelid is puffy and my foot have swollen so it is normal or not

[minnalkodia]

My brother, who is known case of thalassemia major, who was also diagnosed with CML 2 years back, his CML resistant to imatinib, dasatinib... He went into blast crisis stage, so planned for BMT, but because of the complications he had during chemotherapy like infections, raised blood pressure with low blood counts the BMT plan cancelled.... Now he was planned for Asciminib drug, will it give remission from CML, any chance for remission.... Please reply

[ericaayers-lyons]

I'm also a cml patient and I was diagnosed during preop bloodwork for a hysterectomy at the age of 25 due to gynecological cancer I'm now 42 and just found out I'm in the accelerated phase. Where can I find the best information on the best diet to be on

[rajesh]

What isthe reason for cml.i worked in crude oil ship affected by cml in 2015.my family history no one having cancer.please help me to know what makes these kind of cancer

[klutzycutie]

Went to a hematologist a few days ago and they mentioned bcuz my monocytes were insanely high that it could be possible that I have leukemia and I’m worried. I’m praying it’s nothing to serious. My WBC is fine but basophils and eosinophils were a tad high. I have high anxiety over it. Im praying I don’t have leukemia. I can’t stop crying since going to the hematologist.

[jadahjared]

I have a question. My mother for years had an issue with her Leukocyte, they were always extremely elevate despite not having any infection. Her pcp refered her to a specialist. The BCR-ABL was perform on her and it came back positive. But we were never inform until aroung a month after she was also diagnose with breast cancer and her Oncologist suggested for us to go bak to the specialist because he needes to clarify on the BCR-ABL test. We went to back to this doctor and he said that often time the BCR-ABL test can be a false positive. Since we were already dialing with her breast cancer issue we left it along. But as time progress I notice that my mom had all the symtoms associate with CML. She was tested the second time for BCR-ABL and it came back negative. Can someone be BCR-ABL positive on the first test and negative on the second test? Please help. Hope to hear from you soon.

[aninditaghatak]

Hello am Anindita from India..and am on nilotinib from past 7 yrs

[padmalatha]

i am Cml patient last 9years am taking medicene glivec 600mg . i have body pain . i can't control this pain. pls sujjest me some tips.

[maltesemike]

I have myblastimic cancer just find my marrow was positive, I get bruised easy, I'm taking tasigna , generic brand is nilonatab the tasigna is good not bad side effects at all thank for now god bless all yall that have cancer...😇😇, .I refused addictive pain meds, like now my feet get swollen and my foot is bruised but I pray n research anything I'm given, but the true fact dont be scared if you need tell the make listen if he doesn't hes not a good doc, .

[preetamyadav]

Plz lower the price of new drug . Imatinib resistant patient are facing problem bcoz hight price of new drug .

We all are humans and hace same emotions and feelings . God will bless you if you procide new medicine in cheap in India as well .
Ascinib, ponatinib is not available here