« Living with DMD » What is life like with a rare disease like Duchenne muscular dystrophy?

Our Web-doc is available!

We follow the journey of three young people with Duchenne muscular dystrophy (DMD). Each view and share will serve to comfort those who suffer from DMD today and will help to heal future generations... Watch it here.

To learn more about Duchenne muscular dystrophy and rare disease, visit our web site, here:

[s_v____]

I have DMD, I am 12 and I can still walk and even run for a bit. My doctor says that she is surprised because of how well I’m doing. Everyone with DMD deserves a better life

[zoenoel]

My younger brother is 15 with DMD and is thriving in his high school trade school, he’s wanting to become a programmer and he is doing well!

[jimmytiger]

Me also suffering from muscular dystrophy and I'm wheelchair bound. I can realise the hardships and pain of patient and as well as family.
I am 31 now and by the grace of Almighty Allah doing a job and living a happy life which i have given. From Pakistan

[manishasharma]

My younger brother having dmd passed away last year on 29aug at the age of 15 yr 9 months 22 days.😢😢I missed my brother very much everyday💔💔he was very innocent and very closed to me, i was his secomd mother.I miss my brother very much😓😓🙏🙏

[loopymcgeee]

My co-worker has DMD. He has gotten his masters degree, has a family and a really good job. Its possible but I know he worked very hard.

[sanaayub]

Is such beautiful video. I'm also SMD 3 and wheelchair bound in Pakistan.

[dakota]

My older brother had this disease and died two days after his ECS graduation. ..he was only 18 and was my best friend

[sm]

My brother is 33 living with DMD. 💕 Yes he is limited and often refers to himself as a house plant. But he is at home and manages with 24 hour nurse care.

[TheDjRedmix]

tres beau video!!! Mon frere avait cette maladie lui aussi ainsi que mon oncle et l'enfant de ma cousine l'a presentement et tres bien daccord avec ce petit video!! Continuer comme sa !!

[JamesKerLindsay]

Thank you for uploading such a beautiful video. It really shows the different ways that Duchenne affects the life children and adults with the condition and their families.

The one thing I would perhaps say is that while steroids can present a challenge for some children with autism spectrum disorders (ASD), this is not always the case. Our son is on intermittent steroids (10 Days On/Off) and has generally coped very well indeed with them. It is really worth speaking to a doctor about this.

[rhonackimp]

I'm also a 32 patient with DMD and i gave birth to a boy who was also diagnosed with DMD and is almost 10yrs..life is not easy for the both us
I was diagnosed with DMD at 11yrs and for my son at 3yrs
Fortunately i can help myself stand and move on crutches but my son can't stand anymore

[kubasim]

My older brother had DMD and my only wish whole life was to cure it somehow so we both could live normal lives but sadly he unexpectedly passed away few days ago at age 26 :( i Hope there will be something in future to cure this fatal disease so no more young people will die..

[saymyname_bruh]

I got DMD to but im the lucky one because my is not that bad but going wors every day

[reppinkhaan]

I have DMD and I got in a wealchair when I was 12

[sierra]

I have BMD it is a bit slower but it is still fatal. I just recently found out and I'm scared but trying to stay strong.

[kw]

I went school with a family of 7 boys. 5 of the brothers had Duchene.

[delsychavez]

My little brother is 30 years old with DMD it's a hard life.

[cindypalombo]

Dmd has made a mess of my son's life he needs infusion treatments and all becouse of a dr he has not been able to get his treatments at this time

[alfredodeleon]

My son also has DMD he is 13years old, since the pandemic we are not able to go hospital because we have no car, it's hard for us to travel be cause he cannot walk😢😢his body has scoliosis.we need help for his medication 🙏🙏🙏we are from Philippines.Godbless

[elizabethfox]

I have two brothers who has this one of them is 14 and he can’t do anything and I have a 7 year old brother who is able to walk a bit