Management of Low-Risk Polycythemia Vera

Treatment options and supportive care strategies that can be used to best manage patients with low-risk polycythemia vera

[lauraw]

I’ve had Polycythemia Vera now for 23 years. I have come down with Vascular Disease. I had bypass in March 2021 with Mesenteric Artery Stenosis at the age of 51. Really scary time but I’m doing much better. The only thing I take for P. Vera is 81mg aspirin and Hydroxyzine. You don’t need lots of drugs. My body is so used to being drawn I have one pint of blood drawn once a year. Don’t let this illness control your life. You can live a normal life with the illness.

[robertshrewsbury]

I had Polycythemia and had to get a phlebotomy about once a month, because my Hemoglobin was around 55 g/dl and my Doctor ordered it.
Finally I wondered about people with Anemia that were short of red-blood-cells analogously like an opposite to Polycythemia!
Then I looked up the foods that people with Anemia do not eat because they are iron blockers.
Many of these foods are called Oxalate's and absorb Iron. So then I started eating these foods (with Oxalate s) abundantly and after a
few weeks I had my Hemoglobin checked by my Doctor and my Hemoglobin was down to 16 g/dl and now over a year later my Hemoglobin is still 16 g/dl. That is a drop of 39 g/dl’s in a very short time and it held good. Sometimes just a simple procedures are workable.

Of course I believe that my mental procedures, meditations & thoughts had something added to this procedure that was synergy related that made it more effective.

Make it clear that I am not prescribing
anything to anyone, but expressing my own thoughts and experience.
However I would recommend that medical personnel investigate this.

Cordially, Robert Shrewsbury

[alanrobinson]

I have just been told I have borderline polycythemia?
I don't understand it really, does this mean something is going wrong and a cause should be sought.
I appear to be left with no advice at the moment.

[williamllambelis]

Can I just donate double red twice a year and be okay ?

[tammywade]

I take low dose aspirin, my white cells and platelets are high

[kellyparmer]

I have had unexplained dizziness and with my extreme health anxiety, had myself in about a month of stress and panic, feeling of fight or flight mode. Went to dr several times and had R Eustachian Tybe Dysfunction a month after initial dizzy/woozy feeling when moving head to side. Dr saw fluid behind eardrum. Dr feels maybe inner ear or allergy/sinus related lightheadedness along w my anxiety. One day at work my panic and overrhiniking /googlibg got the best of me and I drove myself to the ER fearing brain tumor or heart issue. Was reassured with CT scan and EKG. Blood tests looked good they said excepr when I got home to look at the results, I saw my RBC was slightly elevated by .05 out of "normal range" which cutoff is 5.40. Mine was 5.45. The Hemoglobin, HCT and platelets are all within normal range. I looked back on all my CBCs over the years and RBC was always within normal as well as all others. Should I worry this is PV? I am waiting on a home sleep study as I know I have sleep apnea from some gasping episodes and not sleeping well. I just started taking 10 mg of Lisinopril as we feel my bp was rising and no longer the WCS I thought it was. I have always had anxiety and esoecially health anxiety and my whole family has anxiety issues.

[Apex_grind]

Title is a bit misleading "low risk PV"

[henryhungyo]

I have diagnosed Polycythemera vera 2020 oct plz help me hou can I manage sir