Why Do I Use A Wheelchair? #answer #disability #wheelchair

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⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and POTS along with some mental health disorders.
2. How old are you?
‣ 18
3. What is FND? 🧠
4. What is Tourette's?
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸

(not sponsored! but these are af links so i make a cut from any purchases💕)

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My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, neurodiversity and what its like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and a chronic illness called Postural Orthostatic Tachycardia Syndrome (POTS). Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, YouTube and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am also an ambulatory wheelchair user showing my life using mobility aids and how symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!

[MaddyW.]

Totally off topic but I love your eyeliner!

I can’t believe that some people just can’t fathom that some wheelchair users can technically walk, and you do a great job explaining this!

[annaboileau]

I remember the day I got my chair. I just picked it up and me and my dad went to the art museum. I love art and was exited. We expected to stay for 1 hour before I got grumpy due to fatigue. We stayed 3 hours and when I left i still hade energy to spare. I was so happy that I could enjoy life and not make everyone around me miserable. I am now 2 years in to being an abulitairy wheelchair user and wouldn't ever go back!

[Helenahandbasket]

I too am an ambulatory wheelchair user. I can't go grocery shopping for long without my legs buckling. I love amusement parks, and will rent an electronic one when i go, otherwise my day is over before i leave the parking lot. My normal chair is also a walker, so I'll try and go for a long as i safely can, then i sit and my husband pushes me because, by that point in too exhausted to wheel myself.

[chickennuggiez]

I've actually been wondering this for a while now and I'm glad you answered it! My sibling doesn't have any seizures like you, but they do use a wheelchair for some of the same reasons you do. They can walk, but not for long periods of time. They have this condition where their limbs and bones and such pop out of place at random times. So it's handy to have a wheelchair when, say, their hip is out of socket or just to prevent that from happening.

[elpidakeremidou]

Thank you for explaining! It's really important for people to understand that chronic illness is there, even if we seem to be doing better.

[Sixica]

Thank you for this video. I've had times when using a wheelchair was the most practical solution to problems caused by multiple medical conditions. It has felt in many ways as if I'm "faking" disability, or behaving with some kind of appropriation or misuse of but it also enabled me to enjoy experiences with drastically reduced pain, worry about succumbing to lightheadedness, slowing down those I'm with. It was so ~freeing.~ I've never heard anyone describe this experience before. It's helpful.

[lynd]

Keeping being your beautiful self! I have syringomyelia (a neurological disorder from a spinal cord injury while in the military). Too many people either ignore someone with a disability or think they are faking because they don't take the time to understand disabilities are varied, can have multiple issues, (over 38+ and counting because the initial injury is progressive and causes secondary conditions). The good people out there will see you as the person you are (your disabilities are just an aspect of your life that you may have to work around, but they don't define or limit you). Never let anyone define you. Keep being your beautiful self and shine that light for everyone to see. Hope doing videos helps you and makes others stop and realize that everyone has something they are dealing with and showing kindness, compassion, understanding, and care go a long way to making the world better.

[nathanieloxford]

My mom just took a fall and ended up in the hospital. You've got to take care of yourself, and it sucks that people are always demanding that those with disabilities repeatedly justify their own needs and accommodations.

[mattdoesntknowwhattodowith]

ive done a lot of research for a few assessments on ambulatory wheelchair users, and its really unfair how judgemental the world is for things they don't understand. I hope people can grow to be more understanding.

[christesta]

You're doing awesome Zara!!! You are very motivated. Thanks for sharing!!!❤❤❤❤

[JasonRayShute]

Me too. Postural orthostatic tachycardia syndrome and vertibrobrascular migraine syndrome are my conditions. It was miss diagnosed as anxiety and depression, and then chronic fatigue syndrome. Thank you for your content and the difference it makes.

[Kimmaline]

I became an ambulatory wheelchair user 19yrs ago, before there was ANY representation. I felt very alone. I also had so many people questioning me, telling me I was trying to get attention, I should leave the wheelchairs for people who "need" them, etc.

One day I went to a museum here in San Francisco, and I realized that I couldn't have walked from the front door to the part of the museum I was in. In order to do what I was doing, I *NEEDED* my chair.

It's really sad to me that most people would rather default to the idea of disabled people just missing out before they would consider a broader definition of "wheelchair user." But that's why I became a disability educator, lol.

[dawnbrown]

Thank you SO much for this video! I haven't been using a wheelchair lately, but I do use a walker and have times when it's still difficult! It's rare to hear others who use a wheelchair but CAN technically walk!❤

[whall]

Zara. You are an inspiration to other people with this and similar conditions.
Your beautiful and I honestly wish you the best ❤️

[majckingdom]

Hey zara, I'm 13 years old with Functioning Neurological Disorder and Psycogenic Non Epileptic Seizures. I am also an ambulatory wheelchair user as well. I was diagnosed on March 24, 2023, with fnd when the whole left side of my body shut down. I recover with extensive physical therapy. But then, on August 7, 2023, I had a seizure. I had lots of tests run, and that's when I was diagnosed with pnes. It's been really hard on me and my family, but now I'm doing a lot better, I now have therapy and occupational therapy, and I only have seizures about once or twice a week. It was so amazing for me when I was scrolling one day and found you. You immediately lifted my spirits. I just want to thank you for showing people what things we have to go through. You're amazing and a good role model.❤❤

[nyxthenuisance]

I'm 17 and I'm an ambulatory wheelchair user as well. :)

We keep my chair in my moms car most of the time because I typically only use it when I'm outside the house.

I push my own wheelchair usually while standing and use it more like one would a walker, and can only walk on my own for about 15 minutes before I start having pain. I NEED to have a place to sit comfortably to recharge. I can't sit in most chairs out in public because they don't support me in the way I need, which honestly just causes more pain than if I just tried to stand there.

One of the most frustrating things for me is that the society we live in not only is built to help able bodied people more but they also spread so much misinformation about disability.

Kids in my generation will, most of the time, steer clear of me and my chair or even over apologize for being in the way. If they are confused they're quiet about it and if they don't wanna ask me to my face why I'm walking around with an empty wheelchair then it's their problem and not mine :)

Every once in a while i will get the occasional timid and genuinly curious question.

The thing that makes me sad though is it's ALWAYS the adults that think they know best :(

Comments like "oh is that for me 😂" 💀

And other snide remarks and jokes.
Some teachers will even stop me in the hallway and ask what my disability is, why I need the chair and why I'm in it sometimes and pushing it other times.

It's hard enough as it is not knowing exactly why my body is the way it is and watching as my able bodied childhood gets slowly taken away with nothing I can but when other people question? When other people assume they know what's going on and that I'm doing something horrible all because disability is so often misrepresented in the media makes me wanna cry.

I literally have regular nightmares about people taking away my mobility aids or not understanding and turning their obliviousness into my problem.

I am disabled. It's part of me now and always will be. I'm so proud of how far I've come and I'm finally seeing hope that I don't have to live in constant pain forever.
I'm not ashamed of the fact that I have to function differently than most people. I like being different and I will ALWAYS be proud of that.

If you read this far I want you to know I love you amd I want you to know that we are all have battles to win. No matter if they are on the surface or deep inside. I hope you have an amazing day ❤

[dishwashee]

I had to spend about a year and a half with a wheelchair and mobility aids due to nerve damage and muscle weakness which was made worse by the pandemic. it’s been almost a year now since i learned to walk again, and i’m still building up my strength. wheelchairs are a wonderful thing, but genuinely, no one who is able to walk would choose to use one to get around. it’s heavy and inconvenient- there’s nothing to gain from faking it.

[MiiCreator]

My sister is also an ambulatory wheel chair user.

[catherinesvbialosh]

I am at this point now with my Osteogenesis Imperfecta Type 1 plus my heart and kidneys cause to pass out without any warning…I understand what you mean when you say you use it when you get flares up because that is exactly how it is for me…A good example would a few weeks by miracle I was able to walk without passing out and no symptoms of my heart condition and kidneys…I was able to go to a small store first time in 6 years…I got to drive too and when I got back home I still was feeling strong…But unfortunately like yourself when we get flares up of all our symptoms for me it’s inflammation of the heart causing fluid to go into my arteries and attack the heart…Once it’s attacking the heart I get severe contractions like I am pushing a baby out…Also getting Covid 8 times and now having Long Covid does not help.
You are so brave and strong and sending you all healing prayers to you and I just pressed subscribed on your Channel and put my notification on.

I am so sorry you have to go through so much with your health but like I tell people how I handle it like this is my normal…Plus I get to meet so many great specialists and very kind nurses…Just those two help enormously in keeping our spirits up.

Sending you much love and good health ❤❤🤗🤗❤️❤️

[RedDogs]

I wanna tell u how much I apreciate and admire the fact that you can speak so openly about your life and struggles and take the time to answer questions; I imagine not all of them ar easy to answer to, thus my admiration for your strength.
KEEP IT UP GIRL!!!