Dr. Jonas Bergquist updates on ME/CFS Research Progress! May Momentum Mondays

Jonas Bergquist, MD, PhD, is OMF's Chief Medical Officer & Director of the Uppsala ME/CFS Collaborative Research Center (CRC). Today he shares updates from Uppsala CRC's #LongCOVID research study, findings from the cerebral spinal fluid of ME/CFS patients, and more.

#MECFS #LongCOVID

[happiness]

Looking forward to this.Thank you to ALL involved in the urgent race for a diagnostic, & treatment of M.E.Such a devastating disease🥀.

[FionaEm]

He's always an excellent and entertaining speaker! Hope he discusses his paper about the parallels between ME and trauma patients.

[happiness]

🌺THANK YOU ALL🌺so very much🌺for your ongoing Research into M.E/cfs, the Forgotten, the "Missing Millions".🔴Please WORLD it is our time after SO Long, to be supported & funded.🌺M.E is a life changing, Devastating & untreatable Disease🌺

[kbear]

You're all amazing & invaluable in the fight for ME/cfs.thank you very much.

[solar]

Thank you dr. Bergquist for your work. We understand that only so much can be done with limited funding and that it is on our community to do much more and make the change by forcing politicians to start funding a research.

[sandi]

Looking forward to this! I literally wrote to Biden about the need for research with this condition. I was diagnosed in 2005 and would love a cure. It’s been a long journey going through this.

[DontStealMyBacon]

My biggest take away as a TLDR:

Dr Jonas Bergquist presenting why it's a good thing that no autoantibodies were found in the CSF (cerebral spinal fluid) of ME/CFS patients. Basically, immuno-adsorption might be the only way to treat/remove autoantibodies, which is not very possible when those aabs are inside the brain.

[nenseflip]

Thank you for the update, Dr. Bergquist.

[mooninaries]

I really hope Dr Bergqvist will continue even though the Swedish government has decided to close the ME-clinic were he works. It is such a tragedy that ppl in Sweden sick with ME now has no specialists to turn to! Because of this it is extra comforting for me as a sick person in sweden to see another swedish person studying this!❤

[Jamal]

We are hearing for 14 years that that we have a brrakthrough, but still no biomarker!

[azalea]

These findings certainly sound very promising. 🙏❤

I have been very ME-sick since 2009, so it would be absolutely wonderful if dr. Bergquist and his research team could develop a treatment that could cure us entirely. That is what we have been dreaming of and praying for every day since we contracted this illness: getting our health and lifes back.

Imagine that: being able to work again, visiting friends and family again, traveling again, doing sports again - and all the other things we used to do, which we previously took for granted.

[ChrisKadaver]

I live near uppsala and have had ME/CFS since 2016 and would like to apply to medical trials and testing at uppsala univesity. Where do I sign? :o

[EndersWorlds]

I love hearing from Upssula, they do some super interesting research. Looking forward to hearing updates in the future.

I wondered whether it would be doable to hear about any kind of time lines with the various studies we hear about, big ask I know. I appreciate that research in't generally something that really works to timelines, because there are so very many variables, but would there be a way to share any sort of vague approximations for when different bits of research are hoping to conclude, or even just roughly how long they might be going for?

I keep an eye on the OMF website and read the bits and pieces about the various studies going on in all the different places with great pleasure, but nobody ever says how long these studies are sort of meant for....like are they meant to run for a few months, a year or a few years? I'm not suggesting that hearing about the exact specifics is doable, but maybe just rough ball This study is aiming to take place over the next 3 years and hopefully, if everything goes to plan in the world, will look to maybe publish some time after 2025....or something along those lines. I'd absolutely love to know more about how things are progressing in that way.

[ryan]

Does he talk about the Kynurenine Trial in this? If so at what time?

[maxnits]

But what about Kynurenine trial that Dr Berquist had to conduct a year ago?! Everybody's silent about it like it had never been planned at all!

[Me_ThatsWho]

I've had this since about 1997 following a re-activation of mononucleosis. At this point, the worst part of it is exercise intolerance, brain fog, and profound fatigue. I'd love to participate in a clinical trial.

[niccolowrld]

Amazing presentation! Does anyone knows which cells (B cells / Memory B cells / Plasma-cells) are responsible for the production of Beta Adrenergic and Muscarin Cholinergic autoantibodies?

[samkennedy]

It would be good if you provided a layman's breakdown on these videos for ordinary non medical people. Some of the language is so far beyond the scope of most people. But a lot of people who watch these, including me, are sufferers looking for updates on the progress of finding some kind of cure. Having an A level in human biology helps me (a little) but neice, who also has it, would not understand most of what's being talked about. That's a shame!

[sue]

I’m looking forward to the Med beds coming soon! Tesla quantum healing Technology and many other hidden technologies!

[patrickjohnson]

So how close are they to a bio marker?