Behind the Mystery: IgA Nephropathy

Although it manifests in the kidneys, most scientific studies have found that the cause of this serious kidney disease begins in the gastrointestinal tract. As the disease progresses, up to 50% of patients end up at risk of developing end-stage kidney disease and possible dialysis within 10 to 20 years.

The challenge with IgA nephropathy is that most patients don't actually know they have the disease, and most are diagnosed by chance. Currently, there are no approved treatment options, and everybody in this disease advances at a different level.

There is a significant unmet need in the treatments offered to patients and a need to target therapies at the very beginning of the disease, which is the production of abnormal IgA. The Balancing Act met with nephrologist Jonathan Barratt of the University of Leicester in the UK to learn more. Plus, we meet with a patient, John, whose diagnosis came as shock but is working to help others through his work at the IgA Nephropathy Foundation.


#TheBalancingAct #BalancingAct
106189

[Matt]

Was just diagnosed with IGA. Had a really bad stomach flue that my daughter brought home from daycare, doctor took a urine sample and found protein and microscopic amounts of blood. Ended up having a biopsy and they found I have IGA. My kidney specialist says I am very early stages and still have full kidney function, I'm turning 36 soon. Scary to think of when you have kids and don't want to leave them without a dad.

[NechelleP]

im gonna be a part of a clinical trial next year here in s.korea and i hope and pray that the result will turn out great!

[monikababai]

Can we know more of this successful trial?

[NicCamp]

Today i was diagnosed with IgA Nephropathy. I am 29. I only started to feeling pain 3 months ago in the middle of the night. Both of my kidneys are around 50%

[drfrancescagajete]

IgA Nephropathy patient, on mya 2nd year of my 2nd kidney translant. First one lasted for 10 years.

[muhammedbilgin]

I am 34 after a hypertension problem, and my urine test comes with blood and protein. After that, they found 3A phase kidney disfunction. After a kidney biopsy test, they came up with IGA disease, which scared me with no cure. They have only given me medication that I took before for hypertension, vitamin D3, and cholesterol remedy. These 3 medications will help or not, I will see. I need your prayer.

[marettalisa]

What is the clinical trial of IGA Nephropathy. I want to participate

[thelion]

I am 37 years old man. I have been on dialysis for 10 years and still going. I was diagnosed with iga in 2011. The clinical trail going on right now is called LNP023.

[abdulghafoor]

Doctor please I want diet plan. Reason blood pressure my high and my age 41

[vishnuraja.s]

Am a patient of IGA. 45% damaged. Currently things are under control. Recognized on 2018. Its been 3 years now. Am fine as per was just 23 aged during that time. Any idea how long my kidney will work smoothly?? Now my kidney is working well, all results are also fine.

And wat will be the best diet to avoid failure??

[yashaswigyanpuri]

Please do let us know about the successful clinical trial?

[piyushwalter]

Hey Can Someone Guide Me How Should I Enroll My Mother Suffering With IgA Nephropathy In A Clinical Trail?
Thanks

[kailasnath]

Please upload videos more about this medication research so that it can be cured.

[santoshgupta-qfey]

How i can join clinical trials. My iga is accidently caught at very early stage

[tearsbeers]

I've had Iga nephropathy for 10+ years. My theory is that iga nephropathy is just a part of our auto immune disorders. I'm also allergic to all pollen and I'm undergoing immune therapy for it. Also I'm allergic to peanuts. When I cut out the peanuts the blood in my urine and my stomach pain dissappeared. Get tested for allergies!

[tayloryvonne]

I was diagnosed with iga at 13. I was very sick when I first was diagnosed but it got better slowly and I was able to live normally for a number of years. I'm now 27. 14 years after my diagnosis I'm having problems again. Always so damn tired and just don't feel right. I'm scared. Honestly

[abdulghafoor]

No is my well but I want diet plan only I want to diet plan please this❤❤❤

[chada]

I am 63 and didnt know I had IGA and had good GFR for over 10 years. After getting the covid vaccine my GFR dropped by 50% and I had symptoms of IGA. No more vaccines for me.

[altonmarsh]

I'm a kidney patient myself. When iga was discovered inside me it was already so bad to the point where I went straight on dialysis. And I was/am in end stage renal failure.

[craigwinter]

Waiting on my 2nd transplant because ot iga.