Partnering With Patient Organizations for Inherited Heart Disease

Doctors at the Stanford Center for Inherited Cardiovascular Disease work closely with patient organizations to support families with inherited heart disease.

Joshua W. Knowles, MD, cardiologist and assistant professor of cardiovascular medicine at the Stanford University Medical Center, talks about building relationships with patient-led organizations and industry partners.

Dr. Knowles and other Stanford cardiovascular specialists have developed relationships with technology companies, research organizations, and patient-led organizations. Working with groups such as the Marfan Foundation, the Familial Hypercholesterolemia Foundation, and the Hypertrophic Cardiomyopathy Association, Stanford teams host patient-members at annual patient days.

Each patient day focuses on a specific condition so the attendees can learn about the latest medical advancements. The patients also share their experiences with the doctors and their teams, providing key insight—from a patient’s perspective—into daily life with an inherited cardiovascular disease.

The patients benefit from Stanford’s research experience, and the Stanford teams benefit by learning more from patients, which helps drive future research and the latest standards for patient care. Through these relationships, Stanford brings patient needs to the forefront as they develop research priorities. By translating their research into the best possible patient outcomes, they support patients at Stanford, across the country, and around the world.

[EmberHarrington]

How many decibels is your Vehicle’s
Honk with Lock? Would it wake a baby or child up?
Would it wake a sick person up?
Some are over 100 Decibels!
ONE CLICK OF THE REMOTE, LIGHT FLASH ONLY CONFIRMS YOUR VEHICLE IS LOCKED AND ARMED
NO HONK IS NEEDED
EASY. Just have to break the habit
Please so we can sleep!