TikToker Dies of Rare Genetic Disease That Causes Skin to Blister

Marky Jaquez, a popular TikToker whose story inspired others, has died. He was 21. Jaquez died from Epidermolysis Bullosa, also known as butterfly skin disease, a genetic condition that caused his skin to be so fragile, it blistered easily. Doctors didn’t expect him to live beyond 14 years old. Marky’s mom started posting TikTok videos of her son about two years ago to raise awareness about butterfly skin disease and what it looked like. She had previously lost another son from it.

This was heartbreaking, my thoughts & prayers go out to his family

[chipi]

Damn, that sucks but you know what. He's got a strong will for making it to 21. You didn't deserve that at all, but you kept pushing. If that's not a fighter, idk what is.

[ayssaa]

Absolutely heartbreaking. I feel so bad for all the people living in pain everyday. We shouldnt take our lives for granted, they deserve to be able to be painfree

[tbaymufon]

RIP Marky. You inspired more people than you ever knew.

[scottcrump]

This is when life isn't fair, sorry for your loss, rest in peace little man.

[sleepy.liv.]

Absolutely heartbreaking, he was such a bright young soul who brought smiles to all of our faces when we needed it the most. You will be missed, may he Rest In Peace ❤️

[Ameerkat]

*this person kept on fighting and spread his message online, he is truly brave*

[Slxngerwyd]

Bless his heart, I can’t imagine the pain he went through 🙏 💔

[mom]

I can't imagine losing my baby. My heart goes out to you mom.

[mathildes]

This is a horrendous disease, it's amazing that he and his family had the strength to raise awareness. Hopefully, this will incite people to donate to laboratories working on it and family charities. Rest in peace, devastating

[mjremy]

How heartbreaking for his mom and for him. To lose two children is too much loss in one lifetime. Rest in peace, Marky and Travis. Sincere condolences to their mom.

[jessgrn]

He was in so much pain all his life... Rest easy, Marky 😢

[daniela]

We just lost our home and I thought it couldn't be worst than being homeless. Seeing this breaks my heart. No matter what we may go through just be THANKFUL for another day that God has given us. Rest in peace young man

[hyrunnisa]

I can't imagine losing 2 children from this. My prayers go out to this family.

[DJKevyKev]

I'm really friggin proud of Marky. I can just tell by his smile that he didn't let his disease define who he was. My heart goes out to his family that they get through this difficult time.

[yayothejowen]

Man, I cant imagine how hard it is to lose not one but two sons from the same dreadful genetic disease. Godbless his mom and their family...

[surgeloll]

Rest in paradise. Sending prayers to his loved ones and family

[Vociferous]

R.I.P to this person, they didn’t deserve it, doctors said he couldn’t live past 14, sorry for his passing.

[WallysGirl]

I constantly try to remind myself “it’s a bad day, not a bad life”…I can be so ungrateful sometimes. I’m so sorry for all the pain and suffering this sweet boy had to go thru. He is safe, happy, and healthy with God now💜

[dmercy]

That's terrible. I feel for his mom. 😔😔 Rest in peace to him and his brother who died of this rare disease.