Waiting on a Heart | Rylee's Story

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Seven-year-old Rylee is waiting on her new heart. She was brought to Nationwide Children's Hospital from her home in West Virginia for testing. Our team discovered that Rylee's heart was aging too quickly and closing up the arteries on her left side. It was determined that she needed a transplant, and now she and her family are in Columbus, waiting. They admit that being away from home long term adds another dimension of difficulty to the wait; Rylee's grandfather needs to go back to West Virginia once each week for work. He says, "It makes you not want to leave because you just know, just any day, any minute, any second, they're going to come in and say 'we have a heart'." He can't wait to get Rylee home post-transplant, to get her back to her normal lifestyle. Rylee's family appreciates the care they've received at NCH. Her grandfather says, "Rylee is well taken care of. Her doctors explain everything that's going on to us and that means a lot." She adds, "The nurses even threw her a big birthday party, and all of them came: even some of them who weren't working. I can't think of a better place for her to be than this hospital because they do a super job."